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i think more people should be aware of this condition and i'm glad you have a website to inform people about progeria
For anyone who doesn't know - there is a special CD available from www.play.com (in Europe) and http://www.progeriaresearch.org/ (rest of world) and ALL the money from CD sales goes to progeria research. Just thought I'd mention this as I have a copy and it's lovely!
i have become thrilled to monitor Progerias progress and i am thrilled to see all these cute childrens smilling faces. you are all inspirations
Hello, my name is Kala and i'm in the 9th grade and I had to write a Research Paper on basicly anything and i had watched a program on progeria and i though that it would be interesting to do research on this disease. SO, since i have been looking up information on this disease i have really been touched by all the kids (their so sweet) and I just wanted to tell everybody that i think that this foundation and project is amazing and i'm going to be doing everything i can to help.You all are all amazing, and to the kids you'll be in my prayers! ♥ God Bless ♥ Kala Cisson
Hi!! my neme is masumi.I'm from japan.in Tokyo.24years old. I'can't speak English... But I love Ashley. world people support for YOU.
i would like to fundraise through schools in my area could u give me some information on how to go about it many thanks anita
hello, my name is sarah and i am 18 i have just been asked to do a assigment on a childhood condition at school. i remembered watching a TV program on progeria at college and looking at your web site has inspired me to research progeria as i wan't people to no about it. so just wanted to let you no that i am inspired by you and hope your doing well, keep safe sarah
Hello. Nice to meet you. My name is Aya. I read your book and watched TV with Ashley. I impressed that she is living with positive. And I got something power frome her. I want to tell you my various feeling. But I can't wirte English well.(I'm sixteen) Even now,I had something to tell you. Thank you for gave me lots of thing which changed my view to life.
Hi. My name is Lara. I am 15 and I live in Florida and was assigned by my biology teacher to do a report on any genetic disorder we choose. I had heard about Progeria and was curious about it. I found your page and read about you and Ashley. I feel really touched by your story and I think that we could all learn a lot from you, Ashley. You seem like a really strong, loving, positive thinking girl who really has a love for life. I feel blessed just to have read about you and learn about what an amazing person you are. Keep SMILING and enjoying life!!! : ) Love, Lara
Hello, Ashley and Lori! I have just checked your "What's New" section and found that you are expecting another family member this coming Spring. It is great! Congratulaitons!! Please take good care of yourself, Lori. I am also glad to know that Ashley is doing better now. Being far away from you two, I am praying for you and your family members always. Have another great day today! Much Love, Kanami
Hi Ashley and Lori;)Nice to see you guys.I bought books of "All About Ashley" and "This is my life".I read those books already.I was move and I love it!!!I'd like to be a frind with you too!!! I like your positive way of thinking.Its one of your good points.Im trying to do that same way with Ashley.Its make me feel so good.Thanks girl. well,I hope you gonna reply as soon as possible. Love ya. Tomomy
I'm sorry!!I made a mistake. I love you because I want to make friends with you. ↓ I want to make friends because I love you.
Hello! My name is Chinami.Nice to meet you.I'm 15years old.So I don't write English well. I watched you on TV.You're so cute!!I love you☆ You are alive hard.I was impressed with your a lifestyle. I want to live like you. I love you because I want to make friends with you. I hope you visit Japan someday.I'll come here again. Thank you for reading! P.S. I'll buy your book in Japan!!
hello, hi,i came from in Japan my neme is YUKO. I liked Ashley. Your smiling face likes give the power of living to us. I wants to take contact with you and it writes. However, I am poor at English. Moreover, it writes Thanks ! http://homepage3.nifty.com/heureux/
Nice to meet you.My name is Mitsuki igarashi. I'm in the third-year student at junior high school. So I'm not good speaker of English. I'll study hard and heard. Because I hope to become friend with you. How about you? I want to meet you. Thank you! I love you.★★★ Your friend MIE
When I saw you an TV for the first time, I was already 15. Ashley, you are younger than me, but you became a grown-up faster than me. I learned many inportant things from you. Thenk you for your special smile. Realize our dreams together☆(＾▽＾)☆
I saw a ashley on TV program in japan at FEB. she touch my heart with smily face. I hope ,her pure heart touch other country people who think bad thing I love you Ashley !!! and LOli you are real mam!!big mam! strong mam!!
Hope You live long And your dreams come true
You alll are the most amazing people on the earth. You are like angels! Keep in there and know that you alll have our support! I love you! -Genny
I'm sorry the other day, meaning I have sent an airmail directly to your website. Ashley, seeing you on TV has given me something to live for. Thank you very much indeed, to be born in this world. You're an angel to everyone. I love you.
My thoughts go out to anyone who has progeria or who has a child with it. Good Luck.
Hi Ashley!! My name is Shoko Kobayashi from Japan. I watched the documentary about you on TV. I am amazed by your attitude towards life and your thinking. I just wanted to say thank you so much. You gave me a wounderful impression and positive ideas. I really appriciate you. Your smile is sooooooooo special!! I pray for your happiness from Japan. God bless you!
Hello,Ashley and family How do ya do? My name is reiko from japan.im 18th. First of all,Im so surprised that so many japanese are visiting and writing here!!!Iwas so happy to read and know how they felt. Im sure that the tv program about you impressed many of japanese and gave us fantastic gift.your words are byond price!!!!!everyone was moved and encoraged by you,Ashley. I really appreciate I have got you in my know and ,for me,you are my precious friend in my heart now. I truelly wanna say big theank you to you and hope you are having fantastic time with your family and friends.No matter how far away we are,I think of you always.As you can see,there are sooooooooo many friends of you in japan. take care,love from REIKO xxxxxxxxx
Nice to meet you. My name is Asumi. I watched a documentary program about you last time. I was age same as you, but felt that (14 years old), you were adults. I sleep mentally. I heard a message from you and was impressed very much. I wanted to send daily life in the same way as you happily, too. I support you! Please do its best♪ P.S. It has been wrong that there was in a bottom….
Ashley your story touched my heart. You are indeed a very brave person. You and your family are in my prayers.
I saw the special with John and Ashley on it tthey look like nice kids. I never even knew about progeria until I saw the special. Victoria
Hello!! My name is Nao. I'm girl. I am 13year's old. I watched [science mystery4] I am impressive it!!
Dear Ashley Hello! How are you doing? It's getting wamer in Japan. I hope it's not so cold there and everything's okay with you and your family. I just want to say thank you. I am so impressed with you and you make me so happy. Take very good care of yourself and thank you again. With lots of love Yuki
Hello,Ashley and Lori.I'm 15 years old.Ⅰthink your lifestyle is splendid.You made me happy!!Thank you very much. HAPPY,Ashley:-) Yuka
Hi, Ashley and Lori. I've watched the documentary about you in Japan(I'm now studying abroad ) a few day ago. It realy impressed me so much! Thanks a lot for let me know how much you're loved by your families, your friends and everybody watching you, how warm your family is, and how great your are!People,of course including me, have a lot to learn about you, my dear Ashley. You really live yourself a happy life! I always pray for you and your family. Lori' words that the new coming baby may make you happy but can not replace Ashley. It's moved me to tears. You're a great mother! Wishing you all the best! PS: I saw Michiel,too in the documentary. He's a very cute boy.I hope he can play soccer well someday.
Hi, Ashley and Lori! I saw you on TV in Japan. I was inspired a lot seen how you live your life. I think many of other people felt that way, too. You taught me a lot of things. I bought two of your books today and I like it both very much. I hope you feel better. Thank you so much for sharing your thoughs. You meant a lot for every one of us even if we haven't seen. I love you very much. With lots of thanks and love, Izumi
Hi, Ashley! Nice to meet you! Well, let me tell you a littile about myself. My name is Oka, I am thirty years old woman and I watched your documentary broadcasted in Japan a few days ago. I was so moved by your cheerfulness , strength and tenderness. You are so awesome! I was especially moved by your word," Life isn't too bad to complain." I thought about myself and I realized that I often complain about something which is not big deal at all. I learned a lot from you, and I want to be as cheerful as you are. Just wanna say big Thanks to you! By the way I used to lived in Victoria, BC when I was in high school. Canada is one of my favorite country. Someday I would like to visit Alberta and say hello to you! I wish you won't catch another cold this winter…, take care! Ashley! and best regards to Lori and Evan. Love Oka
Dear, Ashley and her family. you remind me of ＬＯＶＥ,ＴＥＮＤＥＲＮＥＳＳ,ＣＡＬＭＮＥＳＳ ,ＨＡＰＰＩＮＥＳＳ,and ＣＯＵＲＡＧＥＮＥＳＳ. i think it's the most imoprtant thing in our life. God bless you ! love.
Hello, Ashley and Lori. I'm Japanese. Last night I wachted your your documentary TV program in Japan. Before I watched it and meet you and your family I didn't know anything about progeria... I want to say thank you very much, because your philosophy of life cheered me up. Of course your family also cheered me up. To tell the truth since last spring I couldn't find any dream, and it has been difficult to lead my life with confidence. When I watched your daily life, I was impressed by your ideas and your some words. Especially I like your word;HAPPY. You said HAPPY several times when you were interviewed. Maybe I forgot that word recently. I still look for what I want to do in my life but I'll keep trying to find it. I'm sure many Japanese watched your daily life and impressed your ideas and your family. I hope these people who know you and your family lead their great life with word HAPPY. Thank you very much!! Naotaka
Hello, Ashley! You are such a sweetheart! I just wanna say “hello” with respect to you and your loving family. For me, you are the girl living next door, because I had lived in Lethbridge for 2 years, about 10 years ago. I know very well where you live in and still visit whenever I visit Canada. (One of my favorite places is Henderson Park!) So, when I saw HURRICANES game on T.V last night in your documentary program, I felt I was watching the game with you and your grandma at the Sports-Plex! I also have some HURIICANES’ goods bought at the mall, you know? Well, I hope that you can enjoy this season without getting another cold though the weather must be cruel for you. See you around! Love, Yuriko
Dear Ashley, Yesterday I bought your book.Your book is filled with your beautiful words, cute pictures, and love. Then I got to know your new documentary would televised that evening. I watched it. I would like to send hundreds of thanks to you. How beautiful you are. I am deeply touched with your love. My soul is cleansed by your pure spirituality. I am very encouraged by your positive thoughts and ideas on life. Many many thanks. I really love you. And I pray that you have refreshed morning every day without any pain. With gratefulness...
My name is Aoi.This is the first time I write you. You must be very surprised to get a mail from a stranger like me.Please don't be too surprised!! I don't know how to thank you.I didn't know about progeria before I met you.I was impressed with your way of life.I thought that life is good!! Your cheerfulness always makes me cheer up!! I wish I could fly over to see right now,and I want to talk with you. Your words is important for us.Because you have something that I dan't have.Your words have big power!!I want to live like you!!You are very strong. Thank you!Thank you!How many times shall I need it to say that? I love you! I was taught you that many important things to live.
Hi,Ashley! Nice to meet you! I'm a high school student. I'm 16 years old. I watched you by a Japanese TV program. I got a lot of power to live from you. If you'd like, shall we correspond with me? I wait for an ansewr. Send me an e-mail if you have time. Take it easy. Kaori
Hi, Ashley and her family I was very moved by you. Thanks a lot ! Let me share with you my favorite prayer. May I be happy May I be free from suffering May I be happy without suffering May I be equanimious to happiness and suffering. May I be happy May I be happy May I be happy May my dear ones be happy May my dear ones be free from suffering May my dear ones be happy without suffering May my dear ones be equanimious to happiness and suffering May my dear ones be happy May my dear ones be happy May my dear ones be happy May every living being be happy May every living being be free from suffering May every living being be happy without suffering May every living being be equanimious to happiness and suffering. May every living being be happy May every living being be happy May every living being be happy
sorry,,,i can't speak english. little little..english..speak. Hello Ashley and Lori! nice to met you? I'm japanease woman. I love Ashely's a philosophy of life ! thank you! February 19, 2006 mika
hi Ashley:) I've see you on TV once or twice before. and I decided to write a note to you. cuz I watched TV about your life last night and you told us how beautiful it is to live life. and your words encouraged me. cuz I just removed my left ovary lately and I was really depressed and thought about negative stuff all the time when I'm home alone. but your words changed me. and I realized that I have to cheer up and be strong. cuz life isn't so bad as I think:D and I can't just wait for someone to help me. I have to change me myself, right? and I'll live happy life with my family like you do:) so I wanted to say thanx so much to you. love, Bunny
Dear Ashley, I saw your documentary progam last night. I think it was my second time to see you on T.V. I was really charmed by your smile and your energy. I never saw a person with the eyes you have. So pure and so brilliant. I believe that every person has a reason that we were brought out to this world. You are the angle brougt out to this world, who are able to show us what life is about. I was really moved by the light in your heart. The love in your heart the energy of life Thank you Ashley.
Hello,ashley!I am AYUMI. I watched you on TV.I was moved by your word;The life is not as bad as it complains. I want to tell you my feeling,but I can't because of my English,sorry.I study English very more and more and write here again. See you!
Hello Ashley!Hello Ashleys Mom, and her husband,and Ashleys brother!!! My name is taku and i live in japan. i just saw your documentary, and i have to thankyou because you showed me how to live life to the fullest. i have never seen such a nice girl like you, a positive, outgoing, fun, nice girl. Ashley, you gave courage and a good influence to all the people that watched the documentary. you changed MANY peoples life in many wonderful ways. MANY!! you should be proud of yourself!!!! From the botton of my deepest deepest heart, i thankyou. You taught me a great lesson too. Please have a great time with your family and friends!!!
Hi,Ashley! I'm not feel talk to you first time. Japanese TV sometime report your life. Each time I receive courage from you. Thank you, Ashley! Do best, each other!! \(^o^)/
Dear:Ashley How do you do,Ashley. My name is Shiori. I'm 15 years old. I can speak English a little. I thought I'd like to intercheange with you. And I thought I'd like to be a friend. An once-in-a-lifetime chance is called itigoitie in Japanese. So I'd like to do an encounter whith Ashley importantly. I like your smiling face very much. You're shining like a sunflower. And I'm wishing that Ashley is happiness all the while. When you give a mail to me, I will be happy. Thenk you for reading a mail until the end. Good-bye. 2006.February 19 in Japan From:Shiori
Hi, i'm one of people who watched Ashley's program on TV. She gave me an energy a lot. you're a great great girl!! I learned a lot from the program. Give us your smile & energy and love you just being you. I'll keep watching it when you're on TV Thanks xxx Chie
Hi,Ashley! nice to met you! sorry a cant write in inglish. Mas primeiramente fiquei muito comovido com sua istoria,vi uma reportagem sobre voce puxa chorei pois é dificil de se conter sabendo que voce a cada dia pode ser uma barreira para atravesar mas com seu sorriso eo estimulo de vontade de viver é mais forte do que qualquer barreira,eu acredito em Deus que só ele pode ver o nosso nascer eo nosso fim é ele que escolhe! voce me estimulou e me deu mais vontade de viver pois sinto que eu devo agradecer a Deus pelo meu dia e minha vida. Voce é uma guerreira que não esta lutando sózinha,continue sendo esta pessoa incrivél que voce é ok! I now God is look you my litle friend. Big hug and one million kiss just for you.
My name is AKIKO. I'm Japanese girl. I got a lot of spirit from Ashley and Lori. Thank you. And I can meet you and am happy.
HI!! How are you doing??and your mother,your father,your grandmother and your friend are fine?? You are loved so many people! I think,You are so nice,cute and kind,so many people gather! You are so strong ,I was received a big power from you!!Thank you. Explain myself..I am 19,female and I wanna be a hair dressar,I am not good at English ha ha//If you cant understand Im sorry!! If I have a chance,I wanna really meet you! I wanna go to meet to you,talk about you!For Example your favorite food or ....and so on!! Im not good speaker!but I think we can enjoy!! If you dont mind,give me a message! Take care and god bless! Yuri
Hi Ashley!! We are Shin and Masumi Hamada. We've just watched your documentary on TV. We are moved how beatiful you are with a good sprit. Actually your word "Life is not that bad to complain." still stays in our mind. You gave us a big courages and we just wanted to thank you. We wish you all the best. with Smile :) Shin & Masumi
Nice to meet you, Ashley. My name is Asako. How are you? Is your condition OK? I saw you on the TV in Japan tonight(2006/2/28). You gave me a great power. I could think about my life again. You have a great power that make people happy! I was very very happy now. Your power will reach to various country, and various people... so, I keep praying that Ashley and other Progeria kids are always happy. See you again!
I watched a TV show about you. you are a special girl who can help many people. '' you made me realized'' how life is good. we must live as hard as we can. thank you. I hope you and your family is happy forever.
I watched a TV show about you. you are a special girl who can help many people. '' you made me realized'' how life is good. we must live as hard as we can. thank you. I hope you and your family is happy forever.
I just watched a TV show about you. You encourage sooooo many people including me. I'll be praying for you.
Hello.Ashely!Nice to meet you!!I'm Junior high school student in Japan.I'm 15 years old.I watched TV.You are very cool!!And youre message made me happy.Tank you.I hope you having good time.I will send e-mail again.See you.
How do you do ashley. My name is Natsu. I'm japanese and I'm 15 years old. Today, I watched about you program on TV at Japan, and I got a lot of power from you. Really Thank you.
Ashley, I'm studying genetics. You always encourage me. You give me energy. But sometimes I consider what a life is. You give me the answer. Life is all about how you live. You are so gifted. Hope you are doing good. All the best.
Nice to meet you! Our name are Ai&Hiro.We wached TV today. I pray for your happiness from Japan. Have a nice day! (^_^)BYE
Hi,hows it goin? I just wanna say thank u for giving me a chance to think about my life and power!!I knew about u just rightnow from TV.and I thought I wanna say something to you how much I got power from you.someone told me today is new day,tomorrow is new day,acutually always is new day.I love this words.I have onemore words I love..I really wanna say to you this words. THANK YOU FOR COMING IN TO MY LIFE.I respest you.peace.
Hi,hows it goin? I just wanna say thank u for giving me a chance to think about my life and power!!I knew about u just rightnow from TV.and I thought I wanna say something to you how much I got power from you.someone told me today is new day,tomorrow is new day,acutually always is new day.I love this words.I have onemore words I love..I really wanna say to you this words. THANK YOU FOR COMING IN TO MY LIFE.I respest you.peace.
good luck and more power! god is always with you~
hello ashely^^ hows u? i hope everything is ok for u and ur family and also ur friends^^ ur what i call love. much love from far,Aya x
Hello！Nice to meet you!I'm a japanese.I'm sorry that my English is bad. I'm watcing TV about you.It’s very good program． I hope your health is very good. Thank you．
I'm writing a scientific feature article on this syndrome and as I study it more I just can't help but feel for all those effected by this disorder. My prayers go out to all of you.
Nice to meet you.My name is Ayaka :-). I live from Japan. I am 18 old. I watched your story :). Your story moved me to tears.Thank you very much! I admire your lefe. You change my ways. I owe you a lot. I'll cheer for you! Have a nice day. I am a bad English.very sorry:-(
Hi! Ashley, Lori and ppl arond of you ^-^ at first plz forgive me about my poor English.... i didnt know about Projeria until i watched you on TVprogram on Jap. i really wanna say thank you so much!! because you give me great POWER! on your word. and have a nice life ^-^ i hope you can get power on my word lol luv yaaaaa I watched a programme about children with Progeria and was amazed to see how much courage each and every one of these amazing children and their parents have. To see children who feel lucky to be alive rather than having the latest mobile phone was really heart warming and inspirational. I wish you all well....Sarahx Hey all!! Just want to say that i watched a documentary on Progeria and that i found it very interesting and i would like to find out more. YOU ARE TRULY SPECIAL PEOPLE!! thankyou. xx In my psychology class we learned about Progeria and watched a video of a TV program that aired that had Ashley on it. I find it so amazing how much courage Ashley and your family have. I would like to know how I can donate my time to helping with the foundation. Please e-mail me with any ideas of how I can do that. God Bless! Hi my name is Kelly Raecky, and I am also doing a roject on progeria, I am going into pediatrics and have been intrigued by the disease for atleast ten years now. I was wondering if there were any voice recordings or videos with any of the children that I could somehow get a hold of. Please email me if you have any information for me, thank you and I appreciate it, Good luck kids - you are all beautiful children. I am doing a report on progeria and I am very intersted in it I would love to know more info on it and would love to make a donation i must say before i start that i dont know much about progeria but i have the up most respect for you all, they are all wonderfull and beautiful children and im sure they have touched many hearts. God bless you all xx Hey Guys!!! Haven't talk to you for a while just thought I would stop in and say hi!!! We miss you!!! Are you guys going to the reunion this year. Talk to you soon, Love Jamie & Devin How is Ashley, physical condition? From far-off country Japan, I pray for your happiness. God Bless you both. Your strength and courage are amazing! You burn a bright light. I think many people can find their way when we use you as our guide. I hope there will be many more people to help you carry the torch. hi, I'm nathalie and I'm really interested in the progeria why? I think is because I saw a t.v program about this desease. now I'm finishing my carrera paramedic and I'm going to study medicine, and I'm planing someday to help kids with this desease i've been researching about the progeria and i really want to know how can i help in this moment i want to get more information. please send to ash and to the other kids a big kiss and for you i wanna tell you that you're a beutifull person and please don't give up;here to miles of distance are people how loves this kids and wants the best for them. good luck and God bless you. bye Hello Ashley! I just wanted to say that you have made me realize how important life is, and that no one should waste any part of it. You're an inspiration to everyone Ashley! All the best to you and your family! Ashley, You have inspired me to live life to the fullest and not to waste any precious moment of it. You are truely amazing! I wish only for the best because you are such an amazing girl! Thank you for making me realize that no matter how bad a day can be, there's always a brighter tomorrow! I will be sending you my love from Hawaii...take care Ashley, and god bless you and your family! Hi Ashley, Im so thankful that this site is on the web!! E-mail me Hi Guys!!! Haven't talked to you in awhile. Miss "talking" to you guys. Email me or give me a call...I'll try and do the same too!!! Love you all so much. Devin says Hi Ashie!!! Happy New Year!! This is a first time to write here. I've watced many your TVprograms in Japan. I learned a lot from your smile,thinking,attitude... Thank you Ashley. After seeing John Tacket and his friend Ashley's story I have started working with children who have progeria my heart goes out to you all. Sherri I love all of your spirits it inspiries me to want to do better in life and i makes me want to be apart of your life to i already love all of you I am writing my term paper on Progeria and found this site as a source. I first learned about Progeria from a TV program that I watched. Most of my school has never even heard of Progeria, so it is neat to explain it to them all!! Watching that show made me apprecate life more! The coolest thing so far is that my aunt's mother-in-law lives up north and had a neighbor that had Progeria! Small world huh..? (For the statistics of getting Progeria) Just want to tell you to be strong, and thanks to places like this, someday they "WIll FIND THE CURE!" p.s. it would be AWESOME to meet you guys someday! pls email me i love the site. I have been studying Progeria for a science project at school and I must say I am touched. I just wanted to say God bless you all. You are all so strong despite everything and that is so awesome! I support you! i watched an episode on TLC, it had you and your best friend in it. I think you are a very strong person. I want to meet you someday. That show with you in it inspierd me to write a paper about Progeria. Im in 8th grade and live in a small town but i hope to make a difference someday. much love, ashley desautel i love this kids i would like to meet them they are sosweet makes me very happy ihad a stroke im46 woman I am amazed by your wonderful attitude towards life! I dont think anyone can handle a situation better than you. I have sent you emails before and I thank you so much for replying. You are such an amazing kid. I wish I could be more like you. Hope you are doing great! GOD BLESS I also want to say that you guys have made me feel much more confident. You are very strong, keep it up! Stay cheerful like this...Wish I could contact you and you'd reply! I really feel sorry about John, keep your hopes up Ashley! John's always going to be there for you ^^. Hope you are feeling ok lately! Byezz will come post more soon! Yes, I watched the documentary too. I didn't understand Progeria until I did. You are so courageous and I know that you are such an incredible person. Keep on with it. Ashley- I am so inspired by you. I wish you the best of luck. You are a beautiful girl with a wonderful personality! I also watched the re run of the TLC documentary, and I am very interested in learning about Progeria. May God bless you! You and your family are in my prayers. Love, Jessica ((Psalms 121)) Dear Ashley, I just watched the TLC show with my daughters. We were all moved by your strength and courage. You have inspired me to look at life in a whole new way. I feel selfish for ever complaining about having a bad day. I hope that you are doing well. We would love to hear from you if you ever have a chance to write. I wish you all the happiness in the world. You are an amazing girl!! God bless you and your family. Once again, I watched the documentary about you and John and I've been searching trying to find out how you're doing. Sounds like you and your mom are doing fabulous. Peace, love and happiness, kiddo...you guys are TRULY awesome. I'm doing a project about progeria at school and i'm really touch by these kids. They are very brave and i really hope, one day, one cure will exsist. John Tacket was a loving person with a good heart.One thing that I will always remember was that he always had a smile on his face even if he was having a bad day. He didn't seem to have them a lot.Always happy full of energy. Hopfully there will be some kind of cure in the future. i think you are all brave because you all find a way to deal and i respect you for that. hi my name is tasha i was todl about theses children from my freind jessica i really like theses kids and wish them all the best i fell really bad for them and as i lok back now i can see that i should be more respectful and be thankful for what i have and what they dont or will not have i hope that they can fight this and if people want to be rude moms need to learn that it is not always a bad thing because later they will think about what they have and what there children dont so i am wishing everyone the best thanks and i will send another one soon ~*~TASHA~*~ Great website. You rock Ash! Is that little brother of yours becoming a pest yet? Bet he's into everything by now :) I used to live in Coaldale, in fact my daughter was born in Lethbridge, many years ago tho. With Xmas coming up I am wishing you a happy one for you and your family. Ciao, for now. I just watched the show on TLC re: Ashley and John. I know it was taped a couple years back but what a wonderful, informative show. The children living with progeria are amazing individuals who have an amazing outlook on life. As a parent, I also think the parents' of these children have such strength. I was in tears at the end of the show to learn that John had passed away in 2004. My prayers go out to his parents. I just wanted to say hello. I wrote you a personal email but then I found this. :-) I am so glad to hear that Ashley is doing well. Like I said in the email I just watched the show with her and her beloved friend John. I admire your strength dear Ashley and you have given me a whole new outlook on life. Thank you and take care. May God Bless you everyday. your in my prayes and my heart Hey hey lindsay. Iam jessica i heard about all of you guys from devin scullion he is such a great friend(bf). Well my dad raised alot of money for you guys to find a cure . I would really wish to meet you guys ur guys are sweet and cute.IF you were gone i would not want to be alive nymore because my life is empty wit out all of you people . I LOVE YOU GUYS WITH ALL MY HEART!!(L)(L) but here is my email for we can chat (angeljess33@hotmail.com)and can u give to other peopl that have progeria i would love to talk to them and becoem there friend i love you all!!(L) i hope someday we meet. Hi, Ashley and Lori. I have seen the documents on TV and came this website. I read the message 'Current What's New 'and happy to know Ashley is very fine. Thanksgiving to you! Dear Lari and Ashley, I first watched your TV two years ago, and was moved so much that I wrote about that program on my Home Page(it has been on my page). After watching your program the other day, I read Lori's book `This is my life'. I was amazed at your courage to have told about your painful experiences, Lori, but I saw God's hand in your life at the same time. Thank you. May He help you two every day and bless you. Take good care since it is getting colder and colder. http://asyouare.hp.infoseek.co.jp/index.html hey i saw you on tv and it amazed me how strong u are.i love your life.you are amazing. take care &enjoy life much more. wit much love ･･cammy･･ Hi Ashley and Lori! I've seen a TV program about you and I was curious how you are ever since. I hope you are well and I wish you a very best of luck!! Hi there Ash! How are you enjoying ninth grade? Best wishes Nina You have touched my heart in such an indelible way. I wish you all the best that life could ever give and i will keep you in my heart always. and john.. Hoy Ashley, Just as Bas did, I just saw you on t.v. I visited John's site to, and I was really sad to read he passed on. I'm really impressed with the way you and other Progeria-patients deal with your illness. When I watched you this day I tv (it was on the Discovery Channel) I saw this spirit in you, I can't really explain it. You showed me today that every single minute, every single second counts and that all people should enjoy and live life as you do. All the best I wish to you Ashley and thank you. Hi there Ash, I saw you on tv, and i really liked to see you where a motocrosser too. I hope you doing great, and wish you and your family the best. Bas Nice to meet you. I am a girl of 15 years. The book was read. It was impressed. It became energetic. It became study. I am not good at English. It wishes happiness. Good-bye. I watched Ashley on TV and got the courage very much. Everyone's page was seen. That everyone shines for me by a smiling face for children of PUROJERIA including Ashley, I was brilliant and seen. I may be ordinary, but please exert yourself. We may be able to do nothing directly. But Ashley is hoping saying children of PUROJERIA can live by a smiling face happily somehow. If I'm very poor at writing sentences in English, and there are strange sentences, I'm sorry. I think this is a great web site. Nice to meet you. Ashley and Lori and the family. At first please forgive me because English is clumsy. I always think about Ashley recently. I am impressed to always watch a video of Ashley and the book which I wrote of Lori. A reason is because you are honest for fate. I undergo medical treatment by a light injury of skin of a face at home now. Though it is 22 years old, I behave like a baby to a family and I keep on and vomit a complaint immediately. I want to escape from oneself. But I am ashamed when I watch you. I am reminded by you that it "is holy to live". I love a family of splendid Ashley which brought up "current Ashley. I love Ashley very much. If it is possible, I really meet you and I hug it and want to tell. You are really big hope. I pray. アシュリー continue being lived in without pains for a longer time. It is ... with all deep love I just think that you are the bravest young woman I have ever known. You are so incredibly strong and beautiful. You have touched my heart in such an indelible way. I wish you all the best that life could ever give and i will keep you in my hear always. I watched ur documentary this afternoon it amazes me how strong u are Ashley u are such a cute little girl with alot of enthusiasm. I just hope u will continue to stay strong and enjoy life Hello Ashley! I watched the TV program with my mother in Japan and I was very touched. Even your age doesn't really change as mine, I think you experienced much more than me and did very well. Jesus said that He loves everybody and you are precious. Exen you have a handicap, I think I am the one who has a handicap in my heart because your heart is better than normal people. Please take care and may God bless you! Hello Ashley, Lori and the entire family! I finally got to see your documentary I taped the other day in Japan and learned about this website. Ashley, your life itself is such an encouragement to all of us here, and it is hard to meet a person with such a pure heart as you. Each and every one of us who are born on this planet have their unique mission to serve, and your life itself is a proof of it. I am really looking forward to seeing you and your family again on the documentary. I'm sure it will be physically tough as the winter closes in, but please take care and have a great time at school! With best wishes, Machiko Hi!! I'm Yu. 15 years old. I love Ashley, your smile. And I love your way of life. If I do not follow it☆:) Hi Ashley!I didn't know about projeria until I had watched you on TV.I'm trying to be a doctor.I want to become able to heip patients includeing projeria!I hope you live a happy life.I love you! Tomoe Hi. I would just like to say that I am volunteering for the fundraising of progeria from progeriaresearch.com and I hope that some day one of the organizations will find a cure for this terrible disease. Although it does not affect very many people, I understand that nobody, no matter how few, deserve to go through with that. I am going ot work very hard in volunteering. I am also doing a speech about it and try to get my peers at school involved as well. I am really glad I heard about progeria. Good luck. Sincerely, Aimee Hello Ashley and Lori I watched your documentary on TV. I am working with children at International School in Japan. I heard about Progeria when I was studying at Uni. in Australia. I hope Ashley had started her school year well. I look forward to seeing Ashley and her family on TV ASAP. All the best and happy days!! Yuko Hello Ashley and Lori=) I have been looking forward to seeing you on TV since I got to know you through TV program a few years ago. Ashley, I am glad to see your cute smile on TV the other day. You are matured incredibly and have so beautiful mind...thoughful, generous, positive=) Lori, I read a book you wrote and was moved alot by your way of living. I am so glad that you have met a wonderful partner and had a cute boy like a angel. I wish all of you the best and happy days=) Looking forward to seeing you on TV Ashley^^ Aya Hello Ashley and Devon! I saw you two and John on a TLC program last night and I just wanted to say that I admire you all. I wish you the best and I'll keep you both in my prayers. Keep the positive attitude and live each day to its fullest. Brian Hello Ashley, I was watching your documentary on tv the other night and I have to say I Admire you. You changed the way I see many things in life. Your beautiful and I wish you all the happiness in the world. When I saw you on tv it was the first time I have ever heard about Progeria. And ever since then I have been looking it up on the internet looking to support, donate or to help in any way. I wish you the best and i hope you stay strong. Your an amazing person!! I saw Lori and Ashley's story on TLC lastnight and I thought it was great to show how it really is to have Progeria. My heart goes out to everyone who is dealing with this disease. My heart also goes out to John's family, he was an angel and he was really good at the drums. Ashley, you have a lot of Love around you and you always will. Stay positive and keep your head up. Love Lindsey i sended a e-mail for U ashley!! take care!!(i am 10) Hello Ashley！I love your beautiful smile!! hi ashley and lorie - as with many others, i watched your tv documentary in japan the other day. of course i was extremely touched by ashley and her strong will - but also by lorie as well...my thoughts are with both of you. also, on the program, they mentioned that lorie has published a book but i didnt get to catch the title - can you please tell me the title? thank you. please keep us updated (through the website) as to the status of little mouse as well!!! you both have changed my outlook on life! thank you, mika THANK FOR THE GOOD SITE Ashley: I think you are a very wonderful and courageous girl.I admire you very much.I am a mom of a five year old named Tristin.I hope to raise him too be a good kind loving kiddo like you! Wishing you all the happiness and love in the world... Pamela:) Hello Ashley stay strong and be well!!! Hello Ashley and to the family, I've watched your documentry on TV the other day. It was my first time to hear or to know about "Progeria". But through the documentry, I was able to learn and to know alittle about "Progeria". Also, your appearance made me realize that I can't be looking back to the negative sides so much. There were alot that you thought me. Thank you very much. I hope you are enjoying every moment with your family, and I also hope that your pet hamster is now being able to move around in your handmade wheels. I wish you all the best and enjoy your school life too! We love you. From Japan, Hideo. Hi Ashley and family. I had a look at a TV program and I was full of feelings of thanks and wanted to convey this feeling somehow yesterday because today's I was able to change very much. Now I treat mental disease for two years. It thought funnily adversely to live, and the hard thing was oneself always died, and to turn. There is it, but remain || stop taking in || live till can live. And I think that I strongly fitted it like importance of time, Ashley . Because it was hard, English was not confident, but I showed courage and wrote it. Thank you. Nice to meet you. I'm ,Kinu,27,woman. I like dogs. I have 2 dogs. One dog is koro,mixed dog, are 18years old. I watched your program last night. I just thought I want to be a friend with you. have a wonderful time with your family!! Hello, Ashley,Lori,J,and Evan. I'm a university student in Tokyo. You guys have taught us the most important things in our lives. Ashley, I think you are the most beautiful girl!! and I want a family like yours!! Have a nice school days!!Take good care. Love I watched TV last night. Every year I'm looking forward to hear your words,Ashley! I want my daughter to have a mind like you. I hope you and your families always happy. Yesterday late night TV program on air that was your document. I have been known you and your family in TV but I really can't stop my feeling mail you Ashuly.We love you! You have many fun who want support you heart to heart. Yes, I am a mother and wife like your mother.I think I will send you sometime and try to touch your heart strong. Thank you. and Nice to seet you! From Japan hello ashley and family!! i wached about you guys on tv last night. i was really moved by ashley's words. she seems really nice and sweet girl. and very strong! after i watched your program, i started to know about pojeria more than before. you guys told me how much life is so important. i really want to say thank you for sharing your life with us. p.s ashley, you are really sweet girl i think :) i hope your 'littlemous' is still alright :) hehe I am a high school student who lives in the town named Yokohama with Japan's. I have the sickness of birth Me. Neither the distant one nor a detailed one color, etc. are seen easily and various troubles are caused. There are neither a treatment method nor a medicine, and the sickness might not become good. My such dream was to have become a doctor. I want to help the person who has a similar suffering to me by oneself. However, the dream is prevented by a big wall of trouble, and has been broken to pieces. I from whom it was deprived of the dream also have become tedious to study. However, it watched your television then in Japan. It was impressed by the will of adamant and easiness very much. And, it decided to aim at the field of the medical treatment again. The dream is surely realized in me. It is to participate in the research team of Projeria. Hereafter, I think that there are painful and painful a lot. However, I think that it recalls and holds you out at such time. Thank you for courage and impression really. p.s I learnt there was a camp in which the Projeria patient gathered in the television. If possible, I want to participate in the activity as avolunteer. How should I do? Hi, Nice to meet you! I am a Japanese university-student. I watched a TV program about you last night. (I have seen your program twice!) I have two things to tell you. One is...I and my sister really love your smile. You really have sweet,pretty face! Your smile always cheer us up. The other is...Your words "Me Again" gave us great impression. When a reporter asked you "If you will be born again, what would you like to be? ", you said "Me again." I and my sister were moved a lot. We decided our mind to live our own life, to be able to say "Me again" . Thank you very much. Take care, Mali \(^o^)/ がんばって！！Ganbatte Ashley!! （Fight!!) "All this is for your benefit, so that the grace that is reaching more and more people may cause thanksgiving to overflow to the glory of God." 2 Corinthians 4:15 だから、わたしたちは落胆しません。たとえわたしたちの「外なる人」は日々新たにされていきます。 Nice to meet you. It is yumi living in Japan. I knew ashleｙ by a TV program. It was broadcasted by Japan time yesterday. I wanted to say a word and e-mailed it. It is the time that broadcasted a program about DNA in 2003 that I knew this disease. Words might be wrong, but I wanted to say that thank you and e-mailed it. How is a little mouse? Because I do not understand English and use software to translate it into Japanese for English from Japanese, I'm sorry if it was it in a strange sentence. Hi Ashley and Lori, I'm Akemi and a mother or two children like Lori( a girl and a son.) I wathed your TV program in Japan last night. It was my third and latest program to see how you have been doing. Your positive way toward life alwasy gives me energy :) I really appreciate the chance that was give to know you. You are really great. I'm hoping that my children will enjoy whatever they will experience and become positive to them like you. Please let me keep you in my prayers. I do look forward to seeing you soon again (on TV.) Thanks. Akemi Hi to the Hegi family, I saw your program on TV in Japan last night. Thank you for sharing your life with us. It was very moving. I want to tell your story to my students. I talk at the chapel once a month in front of a thousand high school and junior high school students. I thought it would be a warming story to share. What do you think? Thank you, Steve Hey, I watched the documentary on Ashley today. It made me think about life and how precious it really is. Ashley, I think you're amazing. and you are very lucky to have such an awesome family! Have a great day!!!! Hello~!!Nice to meet you.ms Ashley Lori.My name is zi-ko.I am 19 years old.you I watching television about Ashley. That's impressive! and I thought."Human everybody brothers" by proverb. and each other,try one's best 1st today! hi Ashley and family, i just watched a TV program about you and Progeria. How enviable and wonderful family you have!!!! Because of the program today, we have now a much more understanding of this disease in japan. You show us a beam of hope and joy of life. I was really happy, because i could know you :) If you want to know about japan or japanese culture, let me know. I'd love to tell you :) Have a nice day!! Nice to meet you. I was looking at Ashley's broadcasting with TV. It was relieved energetically seemed. I want also to live positively like Ashley. She tenderheartedly I thinks that is terrible man who gives the person courage. Please it is not defeated at Projeria, and live importantly by a day of a day. Iassists. Dear Ashley and Lori Hi,Ashley&Lori!!Nice to meet you.My name is Kanako.I'm 19 girl and Junior College student. My mayjor is English.(My English is not good one. But I try to write....) I've studyed abroad in America.(only 5 weeks though...) I saw you on TV.Your documentary was on TV tonight here in Japan. I got power, courage....from you. I thought about life. What is Life? We have great life each person. It's not always perfect. But I think it is the life.Bad thing will be good memories after that.I respect your way. I was really impressed.You are sooooooo brave.I will live my life more positive from now!!I wanna catch all chances!! My motto is that meet many people and talk about various things and challenge any thing. I wanna see new world everytime.I'm glad to know about you. I could lool back and think about my life. Ashley and Lori, you are one of my respect person.Thank you.Thank you so much!! Much love and courage, from Kanako Hi,Ashley! I am fourteen years old. I am a junior high school student in Japan. I bet I am as old as you.I just watched your TV program. I am very impressed! And, I want to know about you. I want to be my friend.Let me know! Sorry, I cannnot speak English very well... Hellow Ashley!!Tonigit,I watched TV.And I was impressed by your positive words. I was considered about the meaning of living. Thank you and good bless you. I'm sorry about my poor English. Hello Ashley and Lori!! I just saw a TV program. You always teach me a lot of things, and give me courage. Thank you, and God bless you. Say hello to LITTLE MOUSE! Hello Ashley and Lori from the other side of Pacific Ocean! We just saw a TV programme about you and are deeply impressed. How come you can be so positive... You gave us tons of courage. Thank you, and God bless you. Hello Ashley and Lori! I saw your documentary on TV too. You are so breave. Your documentary teach me something important. Thank you! Hello Ashley, I just finished watching a program about you and your family here in Japan. You got over an hour of prime time TV! Anyway, I just wanted to say hello. Hi, Ashley. I just saw the TV program about you. You are so matured, brave and really one of a kind. Knowing you was like a special gift. I realized a lot of stuff i couldn't see. Good luck and god bless you. Hello Ashley and Lori! Ai from Japan. Your documentary was on TV tonight and I couldn't stop crying because you impressed me a lot. I am going to share your website to my all good friends. Thank you for being you! oxox Ai I think that Hayley is absolutley amzing! she's a really incredible and brave girl! Can anyone tell me, do you know which hospice she attends? Hi Hayley! I saw you on TV and I think that you are really brave and that you an inspiration to us all. You're an amazing girl! Hello Ashley and Lori, I have been following your story for years and regularly check in to see how you are doing. I'm very happy to hear that all is going well for you both. Enjoy High School, Ashley!! You are both such an inspiration to me. Take care Jennifer from Toronto Hello hayley, i seen u on gmtv i think your really cool and i just wanted to let u no that i think your really brave! hold your head up high and keep smiling!! lots of love katie age 11 xxxxxxx Hi! I am a student in the last year of the secundary school and I have to write a big eesay about a subjet and I have chosen progeria. I am really obsessed by it, I hope that you can help me with some information! I really have a lot of appreciation for you and your girl is great! I don't know her but I love her already! I hope that you can help me many greetz An sorry for my terrible English Dear Ashley＆Lori I'm sorry. I don't speak English. Ashley’ｓ Mother wrote book "This is My Life" to finish reading You are lovely little girl. I love you. Our friends, we know that God loves you and has chosen you to be his own. Happy are those who remain faithful under trials, because when they succeed in passing such a test, they will receive as their reward the lefe which God has promised to those sho love him. The Load be with your spirit. God's grace be with you all. Dear Hayley, I am from Caracas, Venezuela living in England and… of course after knowing you I have decided that you are absolutely correct: you are a princess! Love, Isa ________________________________________ AFTER HAYLEY And after knowing you, what? Hayley, after you the verse, the project, the word come back to life. Yesterday they were grazing on the ellipsis today after you birds whistles animate fruit, flute and sense. They remind me it is starting time. i was doing research over progeria for a speech i am having to give. i came across this site. it inspired me a lot and i learned many things. i just wanted everyone to know that by making this website Ashley is helping many people to know about a very rare disease... ~!*>Mykah Jones<*!~ I am a student and doing a project for my Anatomy class. Our teacher left the subject up to us, and after seeing a documentary on the Discovery Health channel on Progeria, It made me feel like I really wanted to know more about this rare disorder. So my question is, if any one would like to send me any comments or links I should go to please let me know. I would greatly appreciate it. Thank you,Melissa Carlyle Hi!Ashley and Lori!!! I love U so much!!!! Hey Ashely this is Brittany's big sister! You are so brave the world is blessed with a girl like you , you are truley an inspiration to all. God bless your beautiful heart! YOU ARE AMAZING! Hope to see when school start take care and God Bless ~Candace Wilton~ Just watched the documentary on devon, ashley & John(children with progeria, And let me say I fell in love the three of them, and God Bless them. I am a grandma of 11 and will slay I have as much love for all of you childrenas I do for my own grandkids. What spirits they have, as well fo the parents- WONDERFUL!!!! Hello Ashley, You are so brave! Always know I am praying for you night and day, be strong and don't get your hopes up, because one day we will find a cure! Be Strong:) Hi,there and Ash! I was get vigor by Ash.Thank you☆ way to go Ash. When are you going to post more pictures? Does Devon Scullion have a web sight? Hi there! I watched a programme about progeria on discovery channel and I just wanted to let you know how much I admire your courage and strength.I am glad to see that Ashley is doing well and I wish you all the best.You will be in my thoughts and prayers Big hugs:) i wish the PRF wil find a cure as soon as possible.i was deeply touched by the children with PROGERIA.i'v never heard of progeria til i watched a programme about progeria.i really lost myself in the programme.i could possibly feel myself around them progeria children.After that i went online immediately and read a lot information about progeria.i want to know more about progeria like how it happen or how the progeria cell damage the normal cell and the relationship between progeria and aging disease wil stuffs like that.meanwhile i found what i supposed to do during my university studing.And i wil keep a closer look at ur web set and others about progeria.best wishes.. I regularly drop in and look at your site and I love to hear how Ashley is doing. I find you both very courageous and inspirational and you remind me daily to be grateful for all the advantages that I have. I hope that you keep this site going for a long time and that all is going well for you both. Ash! Do you have a new fan from Brazil!! ME \o/ kisses for you beauty girl!! OH MY GOSH! YOU ARE BEAUTIFUL, I JUST WANT YOU TO KNOW THAT YOU ARE IN MY THOUGHTS AND PRAYERS, MY SECOND COUSIN LINDSAY, YOU MIGHT KNOW HER PAGE, WELL BOTH OF YOU AND ALL THE OTHER CHILDREN WITH PROGERIA ARE VERY SPECIAL GIFTS FROM GOD, AND ALL OF YOU ARE IN MY PRAYERS. ASHLEY- TAKE CARE AND BE SURE TO HAVE LOTS OF LAUGHS AND GIGGLES EVERY DAY!!! LOTS OF LOVE AND PRAYERS SENT TO YOU AND YOUR FAMILY LEAH HILL ashley, you're my hero! God bless you and your household be brave Jesus loves you. i say ashley and lori's page today and i think she is very brave little girl. and also very pretty and it has really opened my eyes to this condition as i thought it wasnt as bad as people made it seem as it is so rare. but i saw this page and others and it brought a tear to my eye to see what you all go through so i wish you all the best. Happy belated Birthday to Ashley! please visit littlelindsay's website she needs your suport. im only ten years old but i love learning about progeria. i have learned about lindsay for the past week or so i tell every one about at least one of these children and how they can help i love learning about these children and how i can help. From:Erin I think that these little kids with Progeria are little fighters and i give my regards. Happy 14th birthday, Ashley. Hope today was extra-awesome! mel I watched the documentary about Hayley last Monday (9/5/05) & i just wanted to say that her story really touched my heart! Also with all the children who have Progeria, their families are very brave with everything that goes on! I never heard of Progeria until I read an article about it a couple of years ago when one of the children were starting school and i have been interested in it ever since. I even done a presentation on it for my Biology project a couple of years ago! Best wishes & lots of love to all the children who have Progeria & keep smiling luv suzi XxX this website was very helpful in finding information. Thanks After watching the documentary on Hayley on monday the 9th May 2005 on Channel 5 O decided to base a informative piece of coursework on Progeria, Watching the documentary on Hayley was outstanding, She is such a brave happy little girl. My love goes out to all the families involved with Progeria x Researching progeria for human genetics college class. This site is very informative. Thank you for your dedication and time for these precious children! Wow! I never knew that their was someone in CAnada who had progeia! By the way im 14 & doing a school project on Progeria I think It is amazing how the children & their familys deal with it. They just continue very day aas if nothing was wrong. I think children with progeria are like heroes . O and Ashley looks soo cute... Just to say hallo to Ashley from Italy! I decided to pick progeria as a topic for a reserch paper for school and looking at some of the pictures of the kids almost made me cry. These kids are so cute! Good luck to all the kids out there with progeria, i'll pray for you all and may God bless you! I'm doing a research project on progeria and i can not beleive how tragic it is i've never herd of Progeria until now and you all are in my heart and mind ill pray for eveyone and there family's Terri i hope they find a cure!!! good luck to all w/ Progeria!!! I first heard about HGPS on the Discovery Channel at home and I was touched at how strong and courageous the kids are; them knowing that they are going to die sooner or later and not knowing when. They act like nothing is wrong and that really deserves a lot of respect for them. Stay Strong!!! hello i a junior in high school and am doing a reseach paper on progeria but so far all i no is what it is and not how it effects peoles lifes so if any body could email me there comments i would me thanfull. i am just trying to understand the disease not just know what it is so thank you email firepixie127@yahoo.com I just was checking out your site. I am doing a project on Progeria after seeing a special about it on tv. Seeing those children ripped my heart out. I am doing the project mostly to raise awareness. Thank you all so much for all that you do for these children. If anyone can offer any comments or personal experinces it would be apperciated! Keep up the good work! hello Miss Ashley & Mrs. Lori, I would like to start out by saying hello-- I had found your page out by a teacher(biogoly teacher) we are studying DNA and RNA and things like that and we came across Progeria and she had shown the class the movie of your guys and i was touched in so many ways Ashley you are a very Great little girl and i bet your mommy tells you that all the time... If there is anything my class could do can u please let me know my e-mail address is ashhilliard@earthlink.net and my school name is Pamilco County High... i would love to hear from you soon Have a great day ashley your friend ashley hilliard hi, my name is Ori, and i'm 9th grade student. i was requierd to make a paper about a genetic deasese. once i saw a tv prog that was aboat a girl named Ashley who had Progeria (is she the Ashley mentioned here?). i than decided that i would male a paper on Progeria. I must say that i was touched. those kids are amazing and i am so impressed. I just wanted to let you all know, parents and kids, that you are simpaly inspiaring. and i am happy to even hear your personal stories. you all have my prayer. I am 14 years old and was deeply touched by the documentary about progeria. I am starting to collect money and would like to know where I can send it to to help children diagnosed with this condition. If anyone can help me, please email me at blondeditz0138@yahoo.com thanks, luv always, Casey About three months ago I watched the speacial report about progeria that TLC gave in tv, and I would like to make a presentation about to my class. Can you please help me by telling and giving me information about your case and what would you say to my class about it? hi, i'm a grade 10 student and am currently doing a project about progeria and its foundation. i was actually thinking of trying to raise money for the foundation, but i don't have any ideas of how to, so i think it would be nice if you put a list of ways to money in the website, because people would be willing to raise money for such important cause, thanks you and have a good day I want you to never give up because you and 29 other kids in the world are being looked up to.I wish you th best of luck in the world and I want to take yours and everyone else place that has progeria keep your head up high Jeri Mosconi with love and hope we will find a cure hello! I'm a student at SCTC in minnesota, and I'm doing a report on progeria syndrome and I came accross your web site you did a wonderful job on your web page and your a very beautiful girl! Take care and god bless! Angie i love what you are doing in the summer i am going out and asking for donations and tats all i have to say and goodluck!!!!1 Hello, Lori, Ashley and everyone who is reading the guest book. I am 20-year-old college student and I read the book "This is my life" written by Lori. I found that book at one of the biggest book stores in Japan. I first knew about Ashley on TV and I just couldn't stop watching the program. This is why I grabbed Lori's book as soon as I found it. Sadly, Japan is known as a most-suicide country. We have kept hearing about suicide accidents everyday on TV. I think that Japanese people should know more about Ashley. How she lives her life and how her family live with Ashley tells me how precious a human's life is... I recently saw a TV show featuring Ashley and other children with progeria. I was very touched by all of the kids and especially by Ashley and John's close relationship. I was saddened, however, to learn that John had since passed away and was concerned as to how Ashley had reacted to that. I found your website and was able to read about that sad time but also was happy to learn that Ashley is now a proud big sister! Congratulations and God bless you all! Hi Ashley and Lori. You are two excellent people because you work everyday to overcome the daily life obstacles. I think that it's the best thing that a person can do. I'll pray for you and your family. I hope and wish that God help you and the scientists to find a cure on the everyday work. See you! Hi,Ashley and Lori:) This is Aya from Tokyo. I knew you two from TV, and today I found a book (the one Lori wrote)at the library and have just read it. Ashley, you are so nice! I'm so grateful that I got a chance to know you, even though it's through TV. And also, your mom are so lovely! I'll try my best to make everyday happy and make people happy, just as you do. I believe these attitudes will make our world better. Thanks a lot and With lots and lots of Love, Aya Hey Ashley! I'm doing a project at school like many other people and I am just letting you know how amazing you are! You are so pretty and so awesome-keep up your gorgeous smile! Keep your head up, and I will be praying for you! You rock! -Cole HI, YOU DON'T KNOW ME BUT I HAD TO WATCH A MOVIE IN BIOLOGY ABOUT PROGERIA, AND MY HEART REALLY WENT OUT. I SEEN THE ONE WITH ASHLEY AND JOHN. THE MOVIE TOUCHED EVERYONE. BY THE END OF THE MOVIE EVERYONE'S EYE'S WERE TRYING NOT TO TEAR UP. ME OF COURSE I COULDN'T HOLD BACK, IT WAS VERY INTENSE TO ME AND VERY HEARTBREAKING AT THE SAME TIME. JUST TO SEE A LITTLE GIRL SO STRONG LIKE THAT MAKES YOU FILL LIKE YOU ARE ONE OF THE LUCKEST PEOPLE ON EARTH! SO ,IF YOUR READING THIS ASHLEY JUST KNOW THAT YOU HAVE ALOT OF FRIENDS OUT THERE, AND YOU ARE IN ALL OF OUR PRAYERS. STAY STRONG HONEY AND HANG IN THERE FOR MOMMY AND DADDY. MUCH LOVE-BRITAINY I was working on an assignment for my Freshman Biology Class. We were given an assignment to pick a Genetic Disorder and make a flier for it. I was absent the day that they have the assignment and my teacher said that progeria would be a great disorder to work on. Today we had went into our library to resaech or disorders and i found out about this rare disorder. I fell fortunite that i am not affected by this. But for all the other people who have this in there life you have my dearest sympathy.I do have one question about this. Is there any cures for this? If there is not i hope that in the near future there is because there have already been two many people affected by this.Just thought i would let you all know what i was thinking Hi,Ashley You are a very pretty little girl. My friends and I are doing a science project on progeria and found your sight,and learned alot. Keep smiling every day and always remeber jesus loves you and your family. Your friend, Courtney My name is Paulette, i have watched many documentaries concerning progeria, i have seen beautiful Ashley on tv to0. Her story touched my heart. Im currently 16, i cant wait to start studying, I want to be a researcher in progeria and hopefully find a cure for it. I hope everything is great w. Ash and his new baby brother Wishing the best for all of you, poly! i love you Ash! I just watched a TV program on Progeria which focused on a British couple's little girl named Fleur, with progeria. The program was very well done offering education about this disease. It was quite touching. I cried afterwards and felt compelled to write. I am a mom of two healthy children and I am also a teacher by occupation. To me, the families who are affected by this disease are incredibly heroic. They also posssess some qualities which not enough "normal or healthy" families possess; unconditional love. They know how to prioritize their time and how to spend time together. They arent' rushing here and there, but instead are spending every available moment with the most precious gifts we are given; our children. We can learn countless lessons from human strife. I admire these families and pray for their renewed hope and faith. I'm grateful to hear about the research foundation which has been formed and has made great strides in such a short amount of time. I will do what I can as a teacher to educate and inform others about this disease. Seeing this program helps me to put my priorities in clearer and more balanced perspective. I would like to let Fleur's parents know how touched I am by their struggle with this disease and how blessed and fortunate they are to have shared their short time with Fleur. She was a beautiful little girl who reminded me of my daughter at that age. I admire them and really do consider them to be heros and angels on this earth! I teach 3rd grade and usually have my students write about what they think a hero is, who their heroes are and why. Then we share and discuss this topic. I'm so surprised by the vast number of those who don't even think about heros, know what they are, or have anyone they admire in their lives. Often those who do mention heros mention sports figures or celebrities. Hardly anyone considers "normal" everyday people in our lives to be heroic or admirable. I enjoy opening students eyes to others' strifes and heroic measures. I think it's important for them to open their eyes to others lives and to see others' perspectives and true challenges. Too often students feel unfortunate if they don't have the right clothes, the hot new computer/video games...etc. They don't know about compassion or empathy. We have become a self-centered blaming society where we are too concerned with ourselves and what we have and how we need more and don't have enough, instead of what other people are going through on this very same planet! I apologize for rambling. I do want to have access to your site so I can stay focused on these goals and also to teach my own children to care more about others and not only ourselves. They didn't see the tv program. I told my daughter about it. I came to the website hoping to show her pictures of Fleur. I was a bit disappointed when I didn't see any, but I certainly understand and respect the privacy wishes of families. God bless you all for your struggles and to those committed to making most out of their lives and also those committed to helping those with this disease and finding a cure. I am in awe of all of you, truly! You DO make a difference in many lives, don't forget that! Respectfully, Melissa Hess I feel so sorry for the victoms of progeris and i find myself very lucky.i am going to ask for donations for the kids with progeria and then i will donate the money ! HI i first saw a show on the discovery channel about progeria two years ago and it touched me so much. Now I am a senior in high school and have decided to do a research paper on Progeria. I need 6-10 pages worth of information, and since there isn't a lot of information about progeria yet, i was wondering if anyone could give me topics to help start up my paper. Any advice would be greatly appreciated. Oh and i do a lot of charity typ walks, i was wondering if there was one on progeria that i could raise money for i made a mistake on the first question it should be,,,,,,""do you know anyone else with progeria then John"" emilie hi hi the reason i am emailing you is because i have done my speech on progeria and i have seen you on T.V. You are just so cool i would love to meet you one day, i have a question, do you now anyone else then John? Bye bye Emilie Lori and Ashley, Your faith in our Lord Jesus Christ is an inspiration to me. It is a blessing to know that I will get to meet you after this lifetime is through. Stay strong and God bless! ~Sarah "And I heard a loud voice from the throne saying, 'Now the dwelling of God is with men, and he will live with them. They will be his people, and God himself will be with them and be their God. He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away.' He who was seated on the throne said, 'I am making everything new!' Then he said, 'Write this down, for these words are trustworthy and true.'" -Rev 21:3-5 Lori & Ashley's relationship reminds me of the one I have with my own daughter. She is my best friend and my inspiration. It is not by chance 2 people's lives are shared. God does know exactly who will bring out the best in us!! Hello, I just saw a documentary about Progeria and heard your story. I was very moved by it. I had never heard of Progeria until I watched this particular show. I got online to research it and I read about John's passing last year (in the documentary, he was 14). Please know that you both are an inspiration. Keep on fighting and take care of your adorable little dog! GOD BLESS! i just finished watching a documentary on the disease Progeria, and was completely oblivious to any sort of disease like it until i watched that program. the story of your daughter Ashley, and John Tacket are incredible. i sat there in awe of these two young people and the energy as well as optimism that they have for life. when the program was over i immediately went downstairs to my computer and researched the disease, wanting to learn more about it, and stumbling upon yours and Ashley's site. i spent a good hour browsing your sight, reading the stories, admiring the pictures and gaining a greater knowledge about the life that Ashley and other children with this disease live. i guess i jsut wanted to say that your story has touched me and i am very happy that i happened to come across that show (which i had never heard of before) when i did. it is heartbreaking that john had to be taken away so soon, but it's so good to hear of his optimism on life and how he took everything as it came his way, enjoying life and loving who he was. i hope Ashley is doing good and congratulations on your new baby boy! on the show you said that you bought a dog so that she could have something to nurture, and now she has the oppertunity to nurture an actual baby! i hope Ashley knows what an incredible young lady she is and how her strength has made a difference. i called my mom down to watch the rest of the show with me, and i learnt that she had grown up with a boy who began showing signs of progeria (or werners) when he was 13, and it was him who taught her to play guitar when they were only 15. a hobby that she has maintained and passed on to me. Hello! I just saw the documentary on Discovery...I think it is amazing how you handle all.You are a hell of a woman with a super cute child. I admire you two. Kisses, Evelin from Romania Ashley you are such an inpiration. Lori you are an awesome mom. I saw you on tv! You rocked! I hope your puppy is doing good. You have changed my life forever. Keep smiling:) Lori & Ashley. I am currently enrolled in a Developemental Services Work program. I am amazed by this rare condition. I hope to learn more about progeria; I will share it with my class. Keep faith in God :) Ashley you are such a gift from God....Your smile seems to light up a room. I love that you have such a positive attitude. I saw you on tv and you are so awesome. I just wanted to wish you well. You're a beautiful girl and a true gift from God. Keep smiling..you have many admirers! Hi Lori and Ashley. I did not realize until I wrote earlier that you would be reading this guest book. Thank you so much for insoiring all of us. We have laughed with you and cried for you in our classes and would honestly love to make it possible for us to meet you. If that is possible, please let us know. We are sorry about John passing away. He was tuly a great guy. We cheered him on when we watched the videos from TLC. Ashley, We love you and wish you the very best. WE cheered you on as well. We would love to hear from you and if possible meet you. We are praying for you and your family. Don Sanders, Biology Teacher We have been following the story of Ashley andd John on TLC in our Anatomy and Biology classees at Harding Academy. WE all adore them both. We will be sending some snail mail. Any way we can send e-mail to Ashley? The kids all want to meet her. She is an inspiration for all of us and her mother is too. Would there be any way we could bring them here to meet our class and spend the day with us? It is rare we get the inspiration for striving for greatness and contentment that we need. Ashley has been that for our class. Thank you, Mr. Sanders, Teacher Hello Lori and Ashley. how's your feel today?? I wached your TV program few month ago. then i just finished read book that you wrot. i've never heard progeria befor your TV program. why you so positive? i think you have and giving big LOVE eh. you make me happy. thank you for sharing. have a nice day!! Best of Luck to all you! You are all beautiful. Don't ever let anyone tell you diffrent! God Bless I heard thinks about progeria so I looked at some sites, I saw different childrens with progeria. I have a lot of anderstanding of the family of a child with progeria. I think, the best thing you can do is to make a lot of fun and do a lot of thinks together with the family. with love, Maaike Hello Lori and Ashley. Nice to meet you!! My name is Michie, I'm 21 years old. And I live in Japan. Few days ago, I watched your documentary on TV in Japan. When I watched it, I got a power from you. So I want to say "thank you" for you. I want to be a strong and kind person like Ashley. Someday I want to meet your!! I'm sorry my English is too bad. Thank you Lori and Ashley. Michie I am from indy and This is heart breaking to me. I hope everybody is doing good. I saw a show on tv and I wanted to know more about the symptoms. Well you may think im weird but i think they are cute i just wanted to let you know that i cant believe how couragous you are. Both of you. Ashley is a beautiful girl and i hope that all her wishes come true. never loose faith because i do believe that in my heart, you were sent from god to show us how lucky we are and that nothing should be taken for granted I saw the story of John, Ashley & Devin on The Learning Channel. My heart goes out to them. They are all in my thought constantly. I am touched by the show my teacher should the class about this since we are learning about DNA. I want to thank the childern for making me look at life in a different way. I also what to thank Ashley and her mom, Lori, becuase you too should be no matter what happens there is always a bond between the parent(s) and the childern. Thank you. You all seem to have wondeful loving families and I will be praying for you, giving you strenght to get throught every day. God, is there for you each and every day even when things go worng. 1 Timothy 4:12 Hi everyones, I'm a student in physichal readaptation until a year... and progeria it's one of the hardest thing that I've seen. Those beautiful kids( they are...), sick... does a cure exist now in 2005?... how many children are touch by Progeria?... I want to know more about that... I want to exprime my gratitude to each parents... and my love to Children... xxx You have touched the lives of many... i know that because in my family there are 10 ppl adn whenever ashley's story comes on t.v even though we have seen it about a hundred times we gather around the tv and watch it. There are no interuptions, we ignore the phone and all is silent. Im always sure to hve kleenex box nearby because everytime i watch it i always cry even though i know whats coming...Though im not crying because i feel sorry for Ashley and other children with progeria, i cry because i see how happy they are. The one part that always gets me is When Lori is talking about Ashley and John and how strong of a friendship they have, they are both very luckey to have each other adn im sorry John has passed, it must have been a great lost. well i just wanted you both to know how much my family respects you and we appreciate everything you both go through:) Ashley & Lori, I saw a documentary last night on Progeria and was touched by your story and that of John Tackett and was sad to see he had passed on. I just want you to know there are a lot of people out here who think your spirit is an inspiration not just for progeria but for many other conditions as well. I wish you well and appreciate your life!! As a Canadian living in L.A. it was nice to see such positive representation coming from up north :-). Thank you for touching my life. hello ash and lori, i was watching the documentary on you guys last night and have to say i am TRULY touched, not only by you ashley but by your momo too. I cannot fulkly express the way you made me feel when i saw you guys with gtreat big smiles all throughout the documentary. I couldnt help but write to you and give you mu personal congrats and best wishes becasue you are truly a little angel. it woull be my pleasure if you could contact me as soon as possible, that would be great and we could learn more frm each other. bless you, and my best wishes} sincerely, brenda ortiz I saw the program on TLC about this disorder and it touched my heart in a special way.Ashley is the cutest and sweetest little girl in the whole world, her story touched my life in so many ways. I worry about so many material things everyday, and she lives her life day to day not worrying about them. She is a ray of sunshine to all, and her mother, all the moms are my heros, thank you for sharing your story. Hi Ashley, I watched your program last night on TV. You are a special and wonderful little angel. I admire your courage. Go Girl!!! You are the bravest little girl I have ever seen. Continue to have faith in God. Your Friend. Lisa Belize Feb. 1, 2005 Ashley, you have a beautiful spirit and make us all realize how very special you, and every one of us is. take care dear :) I also watched the TLC special on Ashley. I am truly inspired by you Ashley. It is wonderful to see others on this site. Ashley- you are so wise in your years I am humbled. I wish you all the best and know that you are one special little girl. I just finished watching the TLC special with Ashley and her friends on it. I have never been so touched before in my life. I think Ashley is amazing and the most beautiful little girl I have ever seen. I admire and idolize her strength and positive attitude. Hi Ashley...I am a big guy from PEI..46..now living in Edmonton..I saw you on TV,,,i just wanted to say..." YOU GO GIRL...YOU'RE THE BEST.." I think that you and Ashley are amazing! God bless you, and know that I will be praying for you. =) How in the world do you cope with it I think Progeria is awful. Hi Ashley! i originally looked on this website so that i could find more information about the disease of progeria for my school project. Your site has been most helpful :)Aw You are BEAUTIFUL! Thankyou since watching little fleur tobut a couple of years ago on the television i have always kept a close eye on events around the world and enjoy looking at the pictures of all the happy faces with not a care in the world! I looked at your web site while researching for my son's science project. He is doing a report on Progeria. I commend all the children who are in this site to allow themselves to be part of a school's awareness on the disease. I am disabled with Crohn's disease and suffer in my own way. I teach bible classes on Monday to 6th grader's and from now on I will include all the children with Progeria in my class prayers so that a cure can be found for progeria and Crohn's. God Bless. I looked at your web site while researching for my son's science project. He is doing a report on Progeria. I commend all the children who are in this site to allow themselves to be part of a school's awareness on the disease. I am disabled with Crohn's disease and suffer in my own way. I teach bible classes on Monday to 6th grader's and from now on I will include all the children with Progeria in my class prayers so that a cure can be found for progeria and Crohn's. God Bless. I was lying in bed almost asleep when I began to think about Ashley out of nowhere. I felt as though I needed to pray for you and your family. Even though I have never met you, I love you all. I have been thinking and praying for you since the day I saw your very first documentary. Love and Prayers, Sharon Hi, My name is Kayla Linton.I'm in the 9th grade here at lindsay high school. I'm doing a an informative speech in my speech class and I remembered seeing something on TV a long time ago that was a sort of reunion for kids like y'all. I had started to do my speech over polio but then i remembered that show i saw. I just want y'all to know that y'all have truly touched my heart. I don't know that I could be that strong to walk the streets and associate with people the way you do. You are all such brave people. I can't describe the way y'all have touched my heart. I see pictures and it breaks my heart to know that there are kids out there just like you. You made me see how lucky I am to look the way I look. please e-mail me, my e-mail is butterbeangirl@hotmail.com Love Always Kayla Linton Hello Ashley and Lori, I just finished watching the progeria documentary on Discovery Channel and decided to send you a warm embrace from the other side of the world. Keep it up brave ones! Biggest (but carefull) hug, Hester Wow! I spent nearly an hour clicking around this website! Your stories and pictures are wonderful, God Bless all of you. Hi, my name is Lindsey, and I actually got on this website by accident but now that I think about it, I do not think it was an "accident" at all. I was researching Werner's Disease, and this website came up as an alternative, along with others, and I randomly chose it out of a long list of others. I just wanted to say that I am so glad that I did. Ashley, you are a truly beautiful girl, inside and out, just so beautiful, and I cannot even begin to explain what it meant to me to be able to read about your life, and look at all your beautiful pictures. Thank you Lori and Ashley, for a truly beautiful website, filled with amazing experiences. These meant so much to me, especially with things going on in my life right now. Thankyou, and please remember that God is always with each and everyone of you, no matter where you go. Hello, my english writing is not so good but I think you'll understand if i say that this page is wonderfull. You can be very proud of yourself. Uniek...special among the others. I am a Dutch girl, 26 years, born in Colombia. Now I live together with my partner. My 'work'is to give childeren with special care a nice day, weekend or holiday. That's about me. Love Ines Tank you so much for all the help i found on this website!! Good luck in the future!! Love Emma Hello my name is Katie Floyd, I'm in the 9th grade and I am doing a project on Progeria. I saw a television show about it and read many things about progeria. I just wanted to say that the children with this disease are amazing. They have to go through so much and I don't think that I could. Good luck and don't give up! Katie Floyd Hey does annyone have a personal story on progeria? i need one for a project i am doing in school and i would be verry thankfll if someone sent me one! I have to say, this is one of the fullest information sites I have ever seen! Thank you for all of the data and photographs on the pages, they are an immense help. you see, i'm doing a study on Progeria for my school science fair, and NOBODY (just about) else has as much info as this site. Thanks a bundle, you're life-savers! HELLO,Ashley and everone! I`m writing this message from Japan. I`m Japanese. So my English is not perfect. But my emotion was moved by Ashley and around her, so I couldn‘t help writing here. Finally, Ashley, you are one of my respecting person. I got something to live. Thank you. ありがとう(^ー^) Thank you for this website! It really shows us how selfish we are not to live life in its fullest, we [at least i do ] take advantage of the things God has blessed me/us with. You and your family will be in my prayers, thank you 4 always keeping your joy and never letting it burn out. may God and jesus always keep close to you and bless you with the things your heart desires! I know they will! Sarah After seeing a documnnet on progeria on TlC, I decided to do my research project on it. All the children are so wonderful and touching. Hello Lori and Ashley! I recently saw the discovery channel documentry on progeria and I saw Ashley on it. My teacher told us that we could keep up with what was going on via the website. I just want to say that I admire you both so much for everything that you have been through and how well you deal with it! hi to all that helped make this site , i am a 13 year old girl and i think that all the children on this site are gorgeous! i am doing a school project on progeria as it enspires me so much and was wondering would u be able to help me with some questions .i would be very grateful for a reply thankz Gillian x I am 15years old,and I am a girl.I live in japan,I watched TV program about you. I got courage from you,because my mother is falling ill now.I want to be your friend,and I want to meet you someday. Bye These children are so beautiful and precious....God Bless You All BESITOS para todos los niños afectados por esta enfermedad. ANIMO todos, y a luchar pq en el dia de mañana se encuentre una solucion a esta enfermedad que afecta a niños inocentes. I would like to tell you that your daughters story has touched me and I would like to thank you and your family for making me more aware of Progeria. God Bless...God Makes Miracles...He did when that little girl was born hi, lori and ashley!! i saw the show on tv last weekend. ashley, you are such a cute girl. you always bring me a joy and happiness!!! i just wanted to say hello from japan. i love your smile!! your beautiful ashley I think it's really great having a website about progeria.I could go on and on about talking about this disease, I am just soooooo interested in progeria. Ashely, hope you are feeling good today. I saw your documentary and was touched by the way you handle yourself. Today, millions of people know about you throughout internet, TV, and other meadia sources. You inspire people to clean our hearts. May your wish to become a veterinarian come true. This website is very helpful and informative. Thank you and God Bless you all. Hi Ashley I wrote you an email a while back about the TLC program, I don't know if you got it, I Feel so bad to find out about John I'm sorry for your loss,I advised my friend Maria to do her school project on progeria, I think that you are an inspiration to live, you are so strong. I pray everyday that maybe they can find a cure for progeria. God bless you, your friend Jessica HELLO ASHLEY IM DOING A PROJECT FOR SCHOOL AND MY FRIEND SUGGESTED I RESEARCH PROGERIA AND I JUST WANT TO KNOW HOW I CAN HELP AND I ADMIRE YOU FOR HOW MUCH STRENGHT YOU HAVE AND I JUST WANT TO SAY I LOVE YOU AND I PRAY FOR A CURE LOVE, MARIA Hi, My name is Emma and I`m 15 years old. I love the site and I think all of you are so inspirational! All the families are so loving and those children are so blessed to have you guys! You will all be in my prayers! Godbless! We were thinking about you...and hope you have a wonderfull christmas Lots of love Andy, Kim and zoe You are very nice. I like your show. i just saw a documentary about progeria on tv and thats what made me want to know more. i couldnt believe what i was seeing and i find it extremly sad. i wish i could help! how can a 15 year old girl like me help build awareness in my school or community? good job on the project and good luck to all the children who have progeria. I admire you so much for all the courage you have. I also admire you because you know how to live in the moment and live each day at your fullest. Just for half an hour of seeing what you go through in the documentary, you made me realize that i should be extremly grateful because i have the chance to live a very long life. its so unfair... thanks, stef 15 yrs old just seen your programme on tv "growing up old" just want to say these children are a credit to you all. they have wonderful personalities and such a positive look on life. they made me really thnk about the way i look at things. my dear thoughts to john tackets parents. would love to no how ashley is getting on. hope you all have a lovely christmas and you get all the things you want. love and best wishes for a happy new year hannah (england) Yesterday I watched the special on TLC and am now glad that I found a guest book where I can say that things that I wished I could've said. I have heard about progeria in the past and saw specials here and there but never been truly touched like I am now. Seeing Ashley's optimistic attitude showed me that I should always live life to the fullest. No reason to think negatively. I just wanted to leave a message and say that Ashley you are truly a beautiful girl and I hope the best for you always. Keep you heads up and stay strong. AS i was viewing a web site on progeria i heard about Lindsay. I am currenty learning about Ashley Hegi and her friend who passed, John T. Learing about these cases of progeria has made me become extreamly intrested in these beautiful childern of God. Learning about this Syndrome has changed me in many ways, and every day i wake i appreciate what God has done for me. I wish your little lindsay, Ashley and all the others childresn of God who suffer and their family the best of luck through this difficult time, i just wish there was something i could do to help. But everyone was born for a purpose in life and these beautiful children's must have been for all of use who take our lives forgranted and dont apprectate how good we have it, to learn something form these beautiful childern who have hearts of gold. STay strong and remember people are praying for you guys after watching your story and other people's story on tv i took a second look at my life. i think you both have a heart of gold and have so much inner strength. i think it is so beautiful that someone with this disease and other diseases or handicap could be such an uplifting spirit, be happy, be so kind and live your lives to the fullest, it truely is amazing. i cried my eyes when ashly's friend jon ask his father "how was your day at work?" and jon said "my day at school was great" i think to myself how can i possibly complain about my bad days anymore? my bad days seem to not be so bad anymore. all these children put alittle bit of sunshine in many people's lives including mine. i have put couple pictures of ashly and jon on my fridge just to remind me of what real angels look like and they do exsist. my heart and prayers go out to you and many other children and their families. thank you for reading my comment, i hope it wasn't too long. god bless tammy Hi Ashley!!!! It's greeat to see your web page. I saw you on t.v the other night, and looked you up on the computer because you are such a lovely person that I wanted to know more about. Merry christmas soon...:) I hope that you get awesome presents!!!! Many many hugs and kisses to you, and send some onto your little brother too :) Love: The Verhaaf family Hi, I saw a show that has me just numb hours later. It was on progia on tlc. I saw ashley and john and devin's stories. Then i read john died. I balled. So anyway I want to do something to help find a cure. Those kids are the most wonderful beautiful children i have ever seen. they dont deserve the pain and short time here. I just wanted to let you know that people do care and i hope that one day there will be a cure! I am asking for any holiday, like christmas which is near, for donations to the progeria fund. I hope it will help. I thank you for sharing the story of progeria. They are great people and I am glad i saw their story. and everyone please keep smiling =) God bless every one of you. Ashley and Lori- I just watched the special on TV about Progeria, and that is the first time I ever heard of the disease. For some reason, I couldn't turn the channel after I started watching it and couldn't stop! You and John just touched my heart so much, I'm so sorry for your loss of your friend John! I know John is up in heaven watching down on you, and he is not in pain anymore and is really happy. I wish there was something that I could do to help. The one thing that I can think of is I am a Residential assistant at a college, and I want to do a program to help raise money for this disease. You are always in my prayers! You are so awesome! I saw you on TLC I thought that you are such a cool girl. I would be so honored to have a friend like you! P.S. I am sorry about the loss of your friend John. this site is awesome. i just watched a show on progeria and i wanted to learn more and more! all the children with this seem to be amazing! thanks for such a great web site. I too just got done watching the special and I guess I just felt compelled to come to the computer and learn more about these children who carry so much strength through their struggles. Children with disabilities appeal to me having an autistic son myself. Once here, I knew why God led me to this place when I read your testimony Lori. I'm so glad you have found Him for comfort. You, your husband, Evan, and Ashley will all be in my prayers. God bless you all. Stay strong in Christ Lori..He is indeed your rock. This is especially for Ashley and Lori You are in my prayers and I ask our Heavenly Father for strength and courage Dieny Hello Ashley and Lori! I just wanted to tell you how much you have both encouraged me! I saw your special on TLC. Even though it was only an hour long It made me feel like I've known Ashley forever. We not only share the same name, but similar interests, I love shopping, and love wal-mart too!lol I'm very sorry to hear about John he is such a sweet boy. Well Ashley if you ever need a friend or someone to talk to I'm always here. God Bless! I have seen lots of specials about progeria and i am very touch with the strength that the kids have. It hurts to know that the have to suffer so much but it looks like they hide with a great smile. I pray thet there could be a cure real soon. May God be swith every child because they are a true gift of God. I will like to learn how to help any way possilbe. thnk you and may God bless all of them. I also saw the show last night on TLC. I am so so sorry to hear of John's passing. I know how much Ashley cared for him, and how much she must miss him. My thoughts and prayers are with you. Lori, I also want to thank you for sharing your beautiful daughter's life with us. Ashley is truly an angel sent from God! She just amazes me with her spunk and love for life. God bless you and your new family! I saw you and Ashley on TLC last night. I want to encourage you both to always look to God. (Proverbs 3:5-6) Ashley is such an inspiration to me. I am considering progeria as the topic of my senior research for school. I am looking forward to learning more about progeria. I will keep you all in my prayers. I saw your show on TLC last night and I just wanted to say I wish you both everything in the world...I cried and cried when I saw that John had passed away....I know how much Ashley loved him. I am extremely proud of you as a mother--You take care of Ashley and show great love for her. God Bless the both of you..and I wish you many more years together! ;) I saw Ashley on TLC tonight. After watching the special I made my way to the computer and found your website. What a precious young lady Ashley is. Thanks for sharing "her story" with us. I will be coming back to read updates on you all. You're in my prayers. God Bless, Amber I would just like to take a moment and say hi to Ashley and tell her I just watched a special on her. You are a brave young woman and you have touched my heart. I wish you nothing but happiness sweetie. I recently watched a show about kids with projeria and i'am very intrested in it. I'am going to research more about this and do any thing i can to help. All i can do now is pray that there is some way these kids can get help. God bless I think that this website is great! And you kids are so beautiful, Im only 17 years old but, I have done research on this disorder, doing this project hit my heart so much, and all I wanted to do was try to help has much has possible! you guys are great kids!!! And I think and care a lot about you guys! If there is anything I can do I would, in a heart beat! It would be so awesome if i could meet any of you guys and just take you out and have a blast that a dream i want to achieve so bad! thanks take care ashley Hi, I was doing a school paper on this disease and I didn't really think much of it. When I started reading about it and seeing what these perious children have to live with every day it broke my heart. I am now a supporter of this project. If there is any way I can help please let me know. My heart goes out to all of you. Parents too. you are all in my thoughts and prayers. :) Gday Ashley and Lori, Having recently become aware of this disease, im very intrigued with it. Im in Year 10 (16yo) at the moment, studing a Life Science (Biology) at school this year. It was actually just on one of the 'Current Affair' type shows and i happened to tape it after seeing a little promo for it. I decided to take the opportunity to look up lots of relevent information and get as much knowledge out of the internet (your site included) to give me a good basis to display to the class exactly what i have learnt. Having read so much i have realised 'almost' (well as much information as i can get) exactly how hard life would be in a situation like this. I think your very strong for coping and think you must be enjoying life to the fullest! I shall stay in contact and check for updates every now and then. -Alex i have only recently learned about progeria in my sophomore biology class. we watched a movie about a little girl ion canada living with the disease, and it really touched everyones heart. i am so glad that people take the time to try and make life a little easier and i would really love to help find a cure someday. stay strong and god bless you all. Lori & Ashley, You are truly beautiful people! I have enjoyed your site so much! It is still amazing to me the spririt that the people affected by Progeria are able to maintain! My daughter was diagnosed at 5 months of age. She is now 8 months. It is very hard but looking at the wonderful pictures and reading your site has really helped us. We wish you and your family the best and keep you in our daily prayers. Hope all is well. We hope it's okay, we linked your site to Lindsay's (www.littlelindsay.com ) If you need anything, let us know! XOXOXOXO God Bless! Joe, Kristy & Linsday Ratcliffe Hi Ashley and Lori, I have to admit that i have never in my 17 years of life heard of this disease until the other day in Biology we are stufying genetics and we watched a video that showed us how this disease affects the children and there families. I felt really bad when i saw this site and had never heard of this before. I hope and pray that someday these some 40 children will have a normal life. And it might not be tomorrow that we find the cure but in the years to come i hop that we will. God Bless and I'm praying for you. Hello Ashley & Lori. I have 20 years old and I´m from Spain. Some days ago I saw on tv a programme about you and it really touched my heart. After it finished, I started searching information about you, about progeria and everything related. So I found on internet this guest book and I don´t want to let pass this oportunity of contacting with you. I think that you two and all your family are "the bravest made people". I cannot express all my feelings, I feel Ashley as near as a sister. At first I cried a lot but know I understand that we all must be happy and think on Ashley, giving her the better life cause she deserve it and more. I would like to have notices from you if it were possible, anyway, be sure that you have a friend in Spain waiting for anything. You´ve got my love Ashley, always and all ways (sorry about the mistakes in english, but my mother tongue is spanish) Lindsay is our niece's daughter. She is such a dear, sweet, lovable baby. Her mom and dad are the best a child can ask for! We will take this as our cross to bear, and will help as much as we can. We love them! I like to say congradulations! to Lori and Family on the new arrival of their son Evan May your future be bright and full of much happiness!! I am a current student at Georgia State University. I decided to do my research paper on Progeria. Being a basketball player,everyone thought that I would do it on some sports thing...but after learning what it was ,the stories I read touched my heart. I included Hayley in my report. To Hayley as well as the rest of the kids,I would like to let you know that youre in my prayers! Keep your head up and know that God loves you no matter what! Hello, I hope my english won't let me down now, cause I really want to tell you two that I admire your strength!!! Two years ago I saw a documentary about Progeria, it really shocked me, a half year later I saw an other one, it amazed me, a couple of weeks ago I saw an article, and this time I was interrested...I've been reading and reading and reading (somethimes al night long)!!! By know I think I'm going to change the subject of my final paper, I wanted it to be about therapy's for kids with a mental handicap, and it's nearly done. But I think people should learn about progeria, and about how special these kids are , how brave and strong they, and there family's are! All the kids I saw on television or pictures stole my heart, I wish there was more I can do for these kids! Though I know for sure that they're happy! And that's most important! I wish you both all the luck in the world! And thanks for sharing not only information about progeria, but also thanks for your personal story and Ashley's beautifull smile! Byebye From the Netherlands! Hi Ashley and Lori. My name's Larissa. I did a research paper on progeria and I used your site to help me find out alot about it. I hope you don't mind but I used one of ashley's pictures on my report. Every saw ashley's picture and thought she was really cute, Well, I really liked your site and I think that the two of you are very brave. God Bless. Larissa I am doing a report on progeria for a human growth and development class. I find this disease very interesting. If there is anyone who would like to e-mail me comenting on the effects of the disease or if you are somehow related to someone who has this disease and how it effects you, or if you have the disease yourself how it has effected you? I would really appreciate it. Thank you so much. Lori and Ashley thanks for being and inspiration on matters of courage and greatness.My only child is terminally ill with cancer and I get to down. When down,I visit your website, and are able to live through another day. Lori, youve found faith through this, I had faith in Jesus, but now I am scared, I am loosing it, and know not what to do, without faith in the goodness of the Lord, and his loving kindness. I have looked and cant find it. Lori and Ashley thanks for being and inspiration on matters of courage and greatness.My only child is terminally ill with cancer and I get to down. When down,I visit your website, and are able to live through another day. Lori, youve found faith through this, I had faith in Jesus, but now I am scared, I am loosing it, and know not what to do, without faith in the goodness of the Lord, and his loving kindness. I have looked and cant find it. Hi im Madeline and I just wanted to say that I loved the great information you got on your page. I helped me understand the illness better. I am only 15 and i decided that i wanted to know more about progeria so i decided to do some research. It is very interesting to know how many illnesses are out there that we should know about. Every young person should research an interesting topic once in a while. When i read the cases of progeria and how they live a normal life even though they were physically different, it touched my heart. It must take a lot of inner strength It totally changed my view to others. Many people say this but know i trully understand better that if someone looks different from the outside it doesn't change how great of a person they might be in the inside! Thank you for your information. I am glad to say that the children of this disease are very brave. i read about Hayley and it just touched my heart. I always had an interest in Progeria. I'm currently a student at hyde Leadership and I decided to do a project on P rogeria. Hopefully, I'm succesful! im in 10th grade and my biology teacher made us do reports on different diseases, my friend got progeria and on her project she had a picture of ashley on it. i dont know what possessed me but i just had to find more out. iv learned alot and i know that sympathy gets you know were but know that not only i but my classmates are thinking of you. if you ever want to talk email me and i would be happy to write you back! much love gab Hey there ..all these kids who have this rare disease are all truly special and they all have a heart full of gold..good luck..Im doing my senior project on progeria and i need a personal interview with a child diagnosed with this disease..Please get back to me on this..Thanks alot and i love you all Hi for Ashley and Lori and family, In Spain this week are showing a documentary about you. I adore both of you, Ashley has a kind of great talent for everything, and Lori is an amazing girl, this world must feel proud of you. I wish the best!!! Hi i am leah and i have recently seen the documentary on progeria and i want everyone to know who has progeria or a family member does i am praying for you. This message is for Ashley, Lori and family. Hi, today I saw on Documania a documentary about you and I just wanted to say......"I think that you are great!!" God Bless you all. xxx these children are absoloutley amazing and they all have hearts of gold God bless you all :) My mother and I were doing research on my condition and ended up remembering seeing you guys on a tv special about progeria. Write me back, if you can :) By the way, AWESOME website! I love it :) Cute pics, lovely looking family! God bless, -Alex What can I say, the faces of these adorable kids just makes me melt! I have seen showes like Maury Povich over the years and how special these kids are. I just want to say "God Bless" to the parents and to the children!! I came across a picture of someone with progeria and came across your site... It's really interesting and the children seems so loving and fun. Great Work & Best Wishes. I stumbled upon this site as I was looking for information pursuant to a show I saw on t.v. about progeria. My heart and good wishes go out to all of you. I have written your names down and will keep you all in my daily prayers. God Bless you all. This is a very nice page, you guys have helped me learn about the causes and and risk factors of the disorder. I hope and pray that they find a cure real soon Last night I watched a documentary on children with Progeria. I was truly overwhelmed by what I saw. Today while at work I have visited 2 websites on Progeria and I am amazed at how brave and selfless these children all seem to be. I am a 32 year old mother of a 7 year old daughter and I can tell you now, if I or my daughter were ever diagnosed with Progeria I would probably drown in self-pity. It has been an inspiration to learn about this disease and the delightful children who have to live with it. I was watching the discovery channel the other night and I saw this for the first time. It made me cry. I never knew about Progeria. I would like to help in any way I can. I do feel bad for the parents and the families that have to go through this but most of all I am sorry for the children. I have to suffer more then anyone. i would like to know if there is any organisation in maryland where i can make a donation toward fighting this disease and do something about it. thank you. I watched a show on this illness called "Progeria: To Young to Be Old". When I watched it, I just bawled my eyes out because it's so sad to see this kids having to go through that. IN MEMORY OF Lukasz,Mariluzoland,Rachel,Svenja,Andrew,Jonathon, Ngoc, Joscha, Stanislaw, Juan, Sabrina, Mihailo, Loana-Lucia, Glendis, Fleur, Christopher, Nigel, Susana, John and Clinton. May you rest in peace. hey! i saw your show on TLC. Your all very cute:):) god bless!! Hey my name is jeannette miller from macon georgia I just wanted to seeing your pictures and the smiles on your cute little faces warm my heart. I pray that God will bless all of you and your families . Love you much take care and keep showing me those bueatiful smiles! I was deeply moved by the show on TLC. The spirit and courage Ashley has is so inspiring. My prayers are with you. God bless you Lori and Ashley. Boris to Ashley and lori. today i bought your book, and read it. then i was really impressed. And i thought you all, Ashley and Lori are really wonderful. anyway want to say thank you. i am really happt to read the book that you wrote. to ashley and lori may God continue to be with you every step of your way and bless you with eachothers company as it will forever be in your hearts. Greetings from PR Just saw end of the program. I am so sorry about John. But I know he is in Heaven looking down and smiling at you Ashley. Hello there... My name is Samantha and I just got done watching Ashely and John on TV. You guys really touched me and put a few tears on my face on this wonderful 4th of July weekend. You guys are adorable and I admire you in tons of ways. I hope you guys are having a safe and enjoyable 4th of July. My prayers will go out for you two. Much love. If you can you may Email me at the Address above. Take care. Happy Birthday Ashley! I just found out. Hi Asley I am watching you and John on TV right now! :) You are such a blessing. I am also very very ill with 5 diseases and am in a wheelchair. I have now been in the hospital 8 months in a bed. But I understand your joy and positive attitude because God has given joy to me. Thank you for being such a role model. I admire, respect and am praying for you, John and your friends. :) Hope we can keep in contact. Hi to your Mom! :) MICHIEL HAS INSPIRED ME AND MY CHILD TO APPRECIATE LIFE, WE WERE INSPIRED BY HIS FAITH, OUT LOOK ON LIFE DESPITE HIS CHALLENGES. OUR PRAYERS GO OUT TO YOU MICHIEL AND YOUR FAMILY. Lori and Jay, Congratulations on the birth of your baby boy July 1. The book of ASHURIMAMA was read today. I am also a single mother in a 5-year-old boy's mother. The book of ASHURIMAMA saved the life. Although it cannot talk in English well It is a thought as if at least the feeling of gratitude is conveyed but. I was allowed to write. Thank you for publishing a book. I just wanted to stop by and say how much these children have impacted my life!! I wrote a report on progeria last fall, and Ashley was my inspiration...i love that little girl!! She is so amazing!! I love you all! I am a Board member of Guitars for Life. We will keep supporting Progeria Project Foundation. We miss John. Casey Morris is an inspiration in his tireless work. I became involved with GFL after the Berkeley benefit concert. Guitars for Life is growing and our commitment to Progeria children is stronger than ever. God bless. Hi, I just wanted to let you know you have a very wonderful site, and a beautiful daughter. I loved reading all about Ashley and her Family, and I wish you all the best!! Hello Lori and Ashley, Saw a TV program about progeria on TLC,It was so moving and inspiring.AShley seems like a great kid, shes so awesome and has a good outlook on life.hope that she lives a happy healthy life. her friend John was a great kid too, im so very sorry about his passing,Im glad he made it to 16 thats an amazing feat for someone with Progeria,according to the program 13 is average lifespan for one with progeria,I hope Ashley outlives this expectation.by the Way Happy Belated 13th Birthday AShley!!!!Youre an inspiration and a fighter, John was too until the end!!! I would just like to say that I think every single one of these children who has this disorder are so brave. I watched a show about this disease and it brought me to tears. Thank you so much for being here. wow, i just wanted say God Bless you all.. I saw a special on discovery health some weeks ago and to be honest until that show I had never heard of this disease, but finding out about it really touched me,how spirited and strong you all have to be to endure what you must endure. I just wanted say,that I'll be praying a special pray that a cure can be found for you all, keep on believen much love Lynn happy belated birthday ashley!! :-) i watched a taping from the discovery channel in school today about ashley and the progeria disease..i had never known about it before, so i searched for info online & found this site... i would like lori and ashley to know that i have been touched by their story, and that i am praying for them... you dont realize how much you have until you open your eyes & see to the lives of people less fortunate then you... may God bless you Lori and Ashley! luv emily Happy Bday!!!!!!:-) Dear Ashley Happy Birthday With a true heart Happy Birthday Ashley!!!! Wow, and teenager and a big sister all in one year. How special. My best to you. Hope you enjoy your hotel stay-will look for pictures on the site. Elaine i felt very touched when i was watching the programme about hayley on channel 4 and was curious to know more. i viewed the progeria site then hayley's and a lot of others. i feel sorry for these children but i'm also extremely proud of them because they deal with is so well. it shows how selfish other people can be and how lucky we all are. i hope hayley and everyone else can enjoy many more years at the sunshine reunions and with their families because they truly deserve it and i hope a cure is found one day that can rid of this illness completely. lots of love heather xxx this is to all the beautiful children that are living their lives with this condition. I have so much admiration for your courage and strengh and pray that some day before too long that they will find a cure, until then hold your heads high and enjoy all life has to offer. Thinking of yous always I just wanted to say that I am praying for both Lori & Ashley and everyone involved in Project Progeria. I saw the show that they ran on the TLC channel and I was reminded of the compassion I felt for these beautiful children a couple years ago when I saw them on the Maury show. I am ashamed that I had forgotten but the TLC show made me want to help in any way that I can. Thank you Lori for being an awesome example of a woman that is full of Gods love. I watched the TLC program and learned more than I knew about Progeria. I love that Ashley,Devon and John all have such great personalities and so much love in thier life. You all touched me life and I send you all my love. You all are truly blessed with loving families. I just wanted to say Happy Birthday to Ashley...my birthday is also coming up! We are both Gemini's and perhaps that is why I feel so close to Ashley! HAPPY B-DAY! I would like to find out more about the disease for a school report. Not only that I am just curious about what goes on in your day to day lives. You probably hear this all the time but im sorry you have to go through this although i know it is only making you a stronger person I am a RN student in my 3rd year of nursing and had never heard of progeria until I watched a documentary on TLC about it. I think that there needs to be more infomration available for people about it and how to assist in finding a solution for this disease. My thoughts are with you all. My thoughts are with you all. I'm a 20-year-old nursing student that will graduate in May from an intense four year program. Never once, not even in the classes that I have taken thus far, have I heard about progeria. While flipping through the channels last night, I caught a glimpse of a special documentary on it. I cannot recall the program that featured it, but today I spent the day searching the internet for information related to this disease process. I pray that a cure will be found & that I may be influential in the health profession by informing others about this condition and keeping myself educated on the progress that arises in this medical area. Thank you for sharing your story with me so that I will no longer be ignorant as to both the physical and emotional changes that progeria causes. I enjoyed the pictures & just wanted to say that you truly look beautiful Ashley! I had the pleasure of watching the program on Ashley, and John and all the other angels that have blessed our world last night on television. Thank you for telling your stories, and may the lord bless you all. i was looking up werner's syndrome for my genetics class, and i stumbled upon your website. i want to let you know that your testimony was very encouraging and reminded me of how MIGHTY our Lord Jesus Christ is and how he is working in so many ways, beyond what i can imagine. i praise God for providing you with strength to live with joy everyday, and may God bless! Keep sharing your faith! Ashly, I came from Poland 17 y ago to Canada, I so You on TV, I love You sweet girl, You so beautiful and brave...keep up Sweet Angel...dedication for Ashly by Olenka Your tommorow is now, sweet Angel, in your sparkling eyes is dreaming sweetest love, let go do the sky, like bird and say to God.... I am your, tiny dove. Your soul is so light, your dreams are so bright.... a magic is around You Sweet Angel Last night on TLC they aired Ashley, Devon, and John. This was the second time i had seen it and enjoyed it. I came on the internet to look up more information and found your website. I love it. I will keep up on the reading of your website. by the way congratulations Ashley on going to be a big sister.. =) I have, over the last few years, been blessed to see and be educated about children like Ashley and John afflicted with this devasting disease called progeria, through Tv shows such as Maury and Medical Miracles. It was with great sadness last night after watching medical miracles, again, that I learnt of John Tacket's passing on March 3, 2004. What a brave and courageous young man he was and I am sure will remain a role model for many for years to come. My deepest sympathies go out to all of John's Family and friends. God bless you all. Hey Ashley, You are amazing and I am so glad that I got to see you on television last night. I have a niece named Ashley Marie. Whats your middle name? WALMART is my store too.....I could live there!!! Even if I had all the money in the world, I would still shop at Wally World:). I have a daughter named Harley, shes 11, she will be 12 on July 7th, and her favorite color is PURPLE. Whats your favorite color? My daughter collects unicorns. Do you collect anything special? Well keep it cool chicky and I hope you get to email me back. My very best to you and your Mom. All the love, Abbie As well as a lot of these other posts.. I too just saw the Medical Miracle program. My parents had already seen it but it was my first time. I'm going to be 18 in about 2 weeks.. and I've never really heard about Progeria until tonight. Like, I have, but not really.. if that makes sense.. But after seeing this special, I just want to hug Ashley and all of you! Oh and Ashley, I love your Yorkie! I have a Yorkshire Terrier too. I hope you do great things, because you're one cool chick. =0). Oh, and I'm so sorry about John. You have my condolenses and my parents as well. Take care! *muah* I am deeply touched by reading about these children. I want to meet all of them! When is the next reunion? I feel like I want to be involved in some way! hello lori and ashley! i just read your story and i just realized that you were very young when you had ashley and i must commend you. i know first hand how hard it is to be a young mother and i only wish i were half as brave as you are I just saw the documentary about Progeria on TLC and needless to say i was very moved. My sympathies go out to John's family and i will pray for him. My son is 17 months old and I have to admit that the TLC special really made my think hard because my son has been losing weight after his 1st birhtday. Also when I was lookign over the sypmtoms, I noticed my son had some of think like the bones of his skull are prominent, his hair used to be dark and now it is very light and there is not much of it. Also he walks very strange like hsi is flat-footed and his chest is pear=shaped with a prominent abdomen. I dont know if paranoia is getting to me but I would appreciaye it if you could provide any more signs or symptoms. Thanks and God Bless. Well I managed to catch the TLC Medical Miracle special just after the Flames hockey game, and like everyone else who posted today I must say I was deeply moved by what I saw. If only we all loved life half as much as Ashley and the others do. I GUESS I DON'T EVEN REALLY KNOW WHAT TO SAY....CAN'T HARDLY SEE THROUGH MY TEARS...I DON'T KNOW HOW YOU FIND THE STRENGTH....BUT I PRAY FOR A CURE FOR THIS TERRIBLE DISEASE, AND THAT THEY FIND ONE SOON!! GOD BLESS YOU, AND A VERY HAPPY BIRTHDAY TO ASHLEY!!!! YOU ARE BEAUTIFUL....LOVE, AMANDA I was deeply moved by the Discovery special and found great hope and promise in your story. I was saddened to hear that John had died, and my sympathies to your family as well as the Taggarts. Just saw the "infamous" Dicovery/TLC channel special, and was deeply sorry to see the loss of John- I know he was and will always be your best friend. Please give my sympathy to the Taggert family. And a very happy birthday to you Ashley- you are now offically a teenager!! I saw a documentary on Progeria tonight and I had to write and do some research. Site's like these help others to gain information. Is there anyway I can help? I love this site! It gave me information and I'm all smiles with the pictures. I am disabled and 50 years old, How may I help Hi. Just wanted to say, that i think, this is an amazing homepage. I saw a program about progeria last night, and it´s just amazing what a posetive attitude to life all these chldren have. It makes me embarrassed that i´m not so posetive myself. I have really learn somethings. I just watched the program of Progeria a couple of weeks ago. I was so impressed by Ashley and John's friendship and way of living with their illness. I'm so sorry to hear about John's death and my prayers goes to his family and friends as for Ashley and her family too - who lost a very good friend. God bless you all. Susanne from Denmark This page really got to me, i saw a tv show on progeria and idecided to do a science projet on it telling everyone about it. I always love comming and viewing all the different imformation on Progeria! My litte cousin who is almost 4 has Progeria and she is an amazing little girl!! She has so much life! Thank-you to everyone who is helping find a cure! WE WILL FIND ONE!!!!!!! I was very moved after watching Hayleys programme. I have been researching ever since I am 12 years old Me and my best friend on progeria to raise awarness we are also trying to raise money My love to everyone Love Ciara P.S I will pray for you all i am 14 years old, and after seeing a documentary on Progeria i decided i wanted to find out more about the condition. i came across yor website. i feel deeply moved by the conviction of your faith, and i admire you and people like you immensly. it puts a whole bunch of mundane things in perspective. god's speed. Ever since I saw a documentary the other day about Progeria I've been touched. My heart goes out to you and your family. In the future I hope to try and raise some money for this cause as I've heard not much is being done about the situation. I'm really glad that I visited your sight. I learned alot of information on progeria. God bless you all!!! God loves you all and you are all angels from Heaven. i watched the doc about Haley last night and I cried my eyes out, you are all so special and blessed and dont ever let anyone tell you different. Hi, I just wanted to say hello and send my love to Ashley and all the progeria kids out there, and to say how much I admire you all. I watched the T.V. programme on Hayley last night, I was moved to tears, what a little sweetheart she is. I thought her parents were wonderful, they must love her very much, how sad this must be for them. They must cherish every day with her, how lucky we are to have our own children, unaffected by this ravaging disease. Good Luck to you all and God Bless. I chose to do Progeria for my genetics report. I barely knew anything but now after reading all of the stories I feel really bad for all of those people who have to suffer with the fact that they most likely live past age 13. Hi my name is Michelle and for a Biology project we had to look up disorders. And i choose Progeria. Untill today i had no clue what it was. Now seeing all the pictures and reading about it i feel so sad knowing some people get it and there is no cure. So i just wanted to tell you be strong an good luck. p.s thank you for making a site where we can all learn more about it. Hello Lori and Ashley, ^-^ My name is Asuka who is 16 years old and live in Japan. =) I saw you on the TV about one year ago, and It was the first time to see you. ^^ Then I saw you on the TV last month, and I read Lori's book,too. These were really deeply moved me and I thinking about life, or something like progeria which is complicated thing lately, few years... I am older than Ashley but I learned many things from her and her family.. She lives in just her life,and it is really important thing for us, you know. I mean, I thought how can I live in this world.. However,her words were reminds me I just should live with real. cause I am who I am.. Anyway,I just want to say THANK YOU to Ashley and her family.. I hope I will know well about progeria and many people will to know about it more.. Step back to see what's going on,then I don't feel so insecure anymore.. I learned from my friends,family,songs and Ashley.. How it is alive important, John's words reminds me strong,too. Well,Thank you for your time and keep smiling. ^-^ Thank you , Asuka Hello Ashley, First off I just want to say that no matter what anyone says to you or about you, you are truly blessed.You are such a special little girl, I know this without actually knowing you.When I read your story I was so deeply moved, it made me realize that I am blessed as well.You just keep living your life to the fullest extent and take it day by day.You are my hero in so many ways.Im fourteen and have no set date or age that I will live to, it will just come. But you my dear have to await the years of passing to come and that is so very sad, but in a way its kind of good because when you are re-born you will be healthier and happier than you've ever been. Keep shining sweetie May God Bless You. My heart to Yours, Lia Hi, our names are Leah and Meredith. We are doing a health project on progeria. Before starting this project, we did not know much about the rare disease, but now that we have started to investigate it, we are truly amazed. It is touching to see all these children and how they live with progeria. If there is anything that you think we should include in our presentation, or if there is anything that we can do to heighten awareness, please let us know. You can e-mail Meredith at Merebear880@netscape.net. Thanks. Ashley is doing great! Nothing to worry about as she is in God's hands. Thank-you for your concern and support. Please submit your 'personal messages' to Ashley through her email. You will find the link on her webpage within the Progeria Project. Thanks. Is everything alright? No updates? Getting worried about you, Ashley. Love Jo This is a wonderful site. I saw a documentary on TV and I had to learn more about it. Keep up the good work with trying to find a cure. My thoughts and prayers are with all of those precious children with this awful disease. i am reasearching progeria for a seventh grade project and i couldnt get off of this website without telling you how i feelbad that i can take advantage of my life like this when all these people have progeria i really hope they find a cure but until then keep going strong and think of the positive side of it which i know its hard but try!!! This is for Ashley and her mom: I am in a freshmen in high school and we are learning about different disorders people can get. And my biology teacher had your movie. He showed us it and you are a sweet sweet girl. You are so smart, and a positive thinker. You have just an amazing story and I am so glad you made a movie about your life. I wish you the best of luck keep your head held high. You will get through it. I also heard about your best friend,John, and I am so sorry about him. Again I wish you the best of luck. It would be nice if you could email me back, my class is very amazed that you are just a strong girl. And you have not gave up. I hope to hear from you soon. My heart is with you, Chelsey Haye we were very touched by all the stories we read about these kids in we ourselves are 13 and cant imagine what it would be like to know that we had this fatal disease. i (raquel) am doing my speech in school on this diesease and the story of hayley. We just wanted to say that were very touched by this and love all of you beautiful children I am 11 years old and I am doing my school project on Progeria. I chose this subject because I was watching a TV show with my Grandmother and I found it interesting and wanted to research it more and my project for school came at the perfect time. I have found this site to be very helpful. Thank you. I am in the seventh grade. How do you manage to live your life without always being scared and sad? So to all children with progeria reading this message: my heart is with you, and may you be blessed with happiness. -a loving friend I discovered progeria from a documentary and I immediately wanted to know more about it cos i work with children and I want to find out everything about them. Your site is so helpful and you must be a wonderful person,your smile is uplifting and I really appreciate your love for life and the joy you convey from your pictures. Congratulations and Good luck. Gimmy Hi Ashley, I have viewed your site several times and each time I am touched. What a great spirit you have. I watched a documentary on TV about Progeria and was just amazed by all the children with this disorder and their families. You show great strength. Amanda This site is so informative... Ashley is so sweet.. I'm going to keep checking in . Thanks! hi, my name is amanda and i am 13 years old. I say a show on TV and am really touched by all of these childrens storys. I think that more people should know about these storys and how they can help(plus i want to help to). I wish you all good luck in life and school! ~lots of love~ Amanda Saw a program about Progeria on TV and wanted to know more. These children are remarkable and we were touched by their bravery and positive attitude to life. We hope Hayley is doing well in school and we hope that you get more funding for research. Just because a condition affects a small number of people does not make it any less important than one which occurs more frequently. Good luck! My thoughts are with all of you, and I pray that a cure is found soon. I just saw a show on Discovery Health about Progeria and decided to do some more research about it. I truly admire your spirit, and I know God will help you through everything - He only gives us what He knows we are capable of handling, you know? You are both in my thoughts and prayers! Keep smiling, ok? i just hear about this diease and i love to know how i can help. I have two kids that i love with all of my heart and i am a single parent. so I dont know what i do if i had to see this happening to one of my kids. I love kids very much and always have. so my pray goes out to the family and the doctor to find a cure for this diesase very soon . thank you. Hi.i read ur book. I was soooo moved. Actually, I wanted to watch a TV about U. But i missed cuz i set a video wrong time. So i decieded to buy ur book. I just say THANK YOU SO MUCH. i can't express how much i was moved. i learned alot of things from U. I'd love to send a letter. But i don't know what adress i should send. If u saw this message, just tell me to my e-mail adress. U R soooooo cute!! I admire your strength. God be with each of you. With love, respect and admiration, Megan Hey! i am so touched by these children i am doing a research report on the disease and i love learning about it. All the children that may happen to read this god bless you! and yes, "Together we will find a cure" god bless ashley and lori I am mother of 29 years who lives in Japan.. It is glad to meet you in the tv.Your smile and John's word "How it is alive is important" remains in the mind. The meaning to live in you was taught.Meeting you will become a treasure by my life. LOVE I am doing a research project and I choose this genetic disorder mainly because it interested me most. I think it is very sad, but in order to help cure it you must know everything there is to know about it. Good luck with your research! I really do admire these young children, and I am going to raise as many funds for you guys as I possibly can. Hi! I just wanted to say that these kids with progeria are great! They can teach the rest of us a thing or two about taking things for granted. I'm high school student in Japan,16 years old.I watched you on TV program. Now,I think I want people to know about you and progeria.. Ashley, you'er wonderful girl!! With LOVE☆SHIHO Hi!I am a 16 years old girl, live in Japan. I watched a TV program on u lastnigh.I want to tell u that I was moved and was so impressed to see the way u live and think about your life.Even though u r younger tahn me, u know about people and lives more than i do.Well....what I am trying to say is that I think u are Beautiful!! and U have Friends all over the world!! Good Luck!(^_^)v Love,Miyuki Ashley is my new hero. I am an English teacher living in rural Japan and I just wanted to let you know how moved I was by your documentary. It was aired, along with its update, on a very popular medical-science show here in Japan. Everyone here in this small farm town has been talking about what a beautiful girl you are. We learned tonight about John and we just wanted to let you know that the both of will be in our prayers. Always keep a SMiLE on your face and never forget to notice the sun in that puddle of rain. Phil.4:13, My favorite Words. I decided to do a college english research paper on progeria because it is so sad to me and so many people I have talked to know nothing of it. Your website was an extreme help in finding information to include. Thank you so much and good luck in the future!! I saw a documentary on the young 16 year old man with progeria not to long ago.I am deeply saddened of his death.I send my sympathies and condolences.I was surprised that children with progeria are so incredibly smart.Watching this has made me realize not to take anything for granted.I am only of 13 years of age right now and i never stop to smell the roses.thank you for making me think. I saw a show on Progeria awhile ago and was curious about the disease. I went on to this website and it gave me information so thank you and I to send my prayers out to all those affected by the disease. Katherine I have just recently found out about Progeria, when I saw a show about it on TLC or Lifetime, I was really interested in learning about the disease, I ended up doing a project on it. I was also shocked to find out about the death of John, my prayers go out to his family, as well as to Ashley. God Bless. So sorry to hear of John. My prayers go out to his family and to Ashley. Love Lena ASHLEY: HI THIS IS SAMBO I WAS PART OF THE GUTIARS FOR LIFE LAST WEEK, I HAD THE PLEASURE OF MEETING YOU FOR THE FIRST TIME,I JUST WANT YOU TO KNOW YOU HAVE CHANNGED MY LIFE,AFTER MEETING AND TALKING WITH YOU,SOMETHING HAPPENED TO ME,I CANT BELIVE HOW SWEET AND TALENTED YOU ARE.BY THE WAY IM THE VERY TALL SINGER GUY FROM CRADLE.WE DINT PLAY BUT WERE BACK STAGE HELPING OUT. ANY WAY I JUST WANTED TO TELL YOU THAT,YOU ARE SO SWEET AND BEUTIFUL, I CANT BELIVE THAT ANY OF THE ROCKER GUYS THAT PLAYED THAT NIGHT IN BERKLEY CHARGED MONEY TO PLAY,I WANT YOU TO KNOW THAT CRADLE IS GOING TO GET A GIG TOGETHER IN CONCORD JUST FOR YOU! SO ILL KEEP YOU POSTED,I ALSO WANT TO GET YOU A CD,OR ASK CASEY IF HE CAN GIVE YOU ONE. L ET ME KNOW WHAT YOU THINK,PLEASE TAKE CARE OF YOUR SELF MY DEAR OUR PRAYERS AND THOUGHTS ARE WITH YOU ALLWAYS, THANKS FOR CHANGING MY LIFE TO SEE WHAT REALLY MATTERS IN LIFE--KIDS LIKE YOU LOVE YA SAMBO Iv enjoyed reading about everyone on this website. I first found out about Progeria a few years ago when i saw a show on it. Then a few months ago I saw anoyher show on TLC about it. That intreged me to want to do my jr. research project on Progeria. I think its a very intersting disease, but also sad. i just wanted all of you to know that your all in my heart.God bless you all! Ash & Lori, Im not sure if you remember me, we use to email back and forth a while back...you really helped me sort out my *religion* stuff. Anyways, I would just like to say that I am so sorry about John. I know that Ashley and John were so close, there was so much joy in your emails when you spoke of him and ur trips with him. My thoughts and prayers are with yourselves and John's family. love, melanie Hey I just want to say that I am praying for all the kids that have this. You all are very good people to ypur family and mean alot also. Well just want to tell yall that I am praying for everyone. God Bless!! Love Amanda I cannot begin to tell you how sad I am to hear about John Tackett. Although I never had the pleasure of knowing him personally I have been following his progress for years now. Ever since I first met him I just fell in love with his personality and his zest for life. Over the years I have grown more and more fond of John as well as the other children suffering with this disease and it breaks my heart that more cannot be done for them. In memory of John and of all of those who passed before him I am going to contact local schools in my area to see if we can raise money for the foundation. I am constantly on the progeria sites checking on the children because they have all become such a big part of my life. I am just hoping that I will be able to achieve what I set out to do. I have started to make these children my mission. They are all beautiful and even though I do not know them at all I love them all dearly as if they were my own. Keep smiling guys, you are all wonderful. John...MAY YOU FINALLY FIND PEACE, AWAY FROM THIS DISEASE...YOU WILL BE GREATLY MISSED. Hi!I saw "science mistery" on TV in Japan. I was impressed with Ashley's stance to do your best in everything. I'm studying pharmacy in university and decide to study about progeria in my future. I will study hard and hard.So you do your best too. I was so sad to read todays update (March 5, 2004) I will think of you on Sunday when you break the sad news to Ashley. Lori John Tacket will be missed. He accomplished so much in just 16 years. Hi I saw the documentary about the Hutchinson-Gilford Progeria Syndrome and Discovery Channel a couple of years ago. It really touched me. I cried trough it.. I am currently 17 years (turning 18 in April), and when I watched it I was 15. I couldn't belive that most of the kids with Progeria didn't live up to the age of 15. Watching and learning about Progeria really made me appreciate what I have. But I still couldn't forget the kids (and the teenagers) with Progeria. Right now I'm writing a paper about Progeria to give to all my friends so they can learn about Progeria, and maybe help the kids with the disease. My prayers goes out to all the kids with Progeria and their families. I admire every single one of you!! Lots of love, Susan this is a great site for people to view. Hi, my name is Troy and I am six years old. Mommy and I watched a TV program about Ashley and the other progeria kids and I thought they were so neat. I have been bugging my mom to get a message to Ashley that I would love to hear from her, maybe meet her sometime. Thank you for your time and I hope to hear from you soon. Troy hI MY PRAYERS GO OUT FOR YOU. I BELIEVE THAT THE LORD WILL HEAL ASHLEY, ITS NOW UP TO YOU TO BELIEVE. I will like to find out more about, ashley. I am doing a research paper on progeria,who knows it might help to persuade more people to find a cure. If it is ok with you, you can contact me by e-mail, about this request. I will be very greatful. And remember there is nothing too big for God. The bible says you only need to have faith as small as a mustard seed, he'll do the rest. I look forward to hearing from you. Hi kids! I just want you to know how absolutely beautiful you are! Everywhere you go you bring sunshine and happiness. You are God's angels, each and every one of you, and don't ever forget that. May God bless you and keep you safe. You are all in my heart. Love, Amanda Hey My name is Vanessa and i am doing an essay on Progeria and i was wondering if u had anymore information about it baecause i would like to know more about it!! I was atching a show on it the other day about a girl named ashley and a boy named josh and they were meeting for the first time it was very cute!! You probably know them but yah anyways i better go!! Bye Hi my name is liv and I'm 13 years old. The other night while babysitting my sister, I turned on the tv and saw the show on progeria that was on primetime and I couldnt stop watching. I had never known about progeria and after watching a few minutes of the show I was so interested. I learned so much.I couldn't believe how brave Ashley, John and Devon are! You guys are all insparations to me. Its amazing to see how you live life like anyone else and you live it to the fullest. I'm sure if I were in your place I wouldn't be as courageous. Anyways please don't ever give up hope and god bless you all! love from----LiV I am pleased to read that there are things you can do to help these children. My heart goes out to the children and the family. God Bless All. I saw Ashleys documentary "In Times Shadow" several years ago and thought of Ashley often, wondering how things were going for her. I even contacted the tv station it aired on to find out but they had no news. I was flipping channels on the tv last Friday night and to my delight there was Ashley on a documentary called "Growing Up Old". I was so happy to see her again. She is the most delightful full of life little girl. You are so lucky to have such a wonderful little girl. My boy is only 11 months old and if his little personality resembles anything of Ashleys I will be a very proud momma ( I already am but I would be even more so) My best to you and your family. Michelle Ashely, Devin, John, everyone... you're all so amazing! I love to hear about your encounters and accomplishments. You are so strong and beautiful and inspire me more than you know. I think about you all so much and it warms my heart to see the laughter and enjoyment that you have shared with the world. All my love, Irina there was a special on TV about progeria and I felt the need to research it. The kids on the show were amazing and their spirits were so unbroken that it gives me hope. They are so strong and positive,God bless them. After coming across a documentary about progeria in which you were profiled in tonight, I felt compeled to reaserch progeria. During my research I came across your web page and was delighted to learn that you have accepted the Lord into your hearts. I could not have read better news. Thank you both for giving up your privacy and sharing your lives with the world so we can all learn abour progeria. God Bless you and keep you safe and comforted. Love Crystal Thank you for all the education, I will definatley tell all I know about this website and how they can maybe help bring awareness and donate. Your special on TV tonight was awesome, truly inspiring and heart felt and honest. Thanks again! Kelly I have just seen a television program about progeria and my heart was touched so deeply, like never before. I have seen many sick children either in person or on television over the years but I have to admit that I have NEVER in my life felt the way that I have when I saw these children. The emotions that went through me were surreal and my flood of tears astonishing to me. These children have such passion and a zest for life that it is truly inspiring. My heart goes out to all of the families who live with this disease day after day, you are very strong people. To the children who have the disease...YOU ARE ALL A HUGE INSPIRATION TO ME. In all honesty I do think about all of the children who have progeria on a regular basis and I tell everyone who will listen about them and how much they have inpacted my life. Please continue informing people about this disease. I just watched a show on Progeria, which prompted me to do some internet research. I am very moved from what I am reading on this site and similar ones. There are people who care about these little ones. I am a young person, and I pray for the day when no one will ever have to suffer again. (Revelation 21:3,4) I am 17 years old and am a very proud volunteer for the National Progeria Research Foundation.The children with progeria have really touched me in a way that i can not describe. They have all of my love and support.Keep staying strong and never give up! I'm just writing to you and your family to say that I think it is a wonderful thing to go day by day and try to make the best out of life! I wish I had the courage and understanding of what you are going through. I hope you do make the best of your life and have many fortunes to look forward to. Thank you for your website, it helped a lot with my biology report. I watched a documentary on Progeria on The Learning Channel and I my heart was very touched. I had heard of the disease before, a long time ago, on the Maury show. I was too young then to understand what it was about. I was so inspired by the children shown on the show; they have more courage and appriecation for life than most people I know. I have become very interested in Progeria, as I have studied genetics at my University. I am also doing a presentation to one of my classes on Progeria. God Bless every child and family that has to cope with Progeria, and I pray you find a cure soon. All my love... ashley you are a beautiful young girl! never lose sight of your dreams, and always follow your heart! i am currently doing a presentation on progeria, and i came across your site as one of the most informative ones out here... excellent work, and lori, god bless you for giving your heart and soul to your beautiful daughter, and your courage and wisdom is admired everywhere..much love to all, sara Hi! I am a senior at Madison High School in Middletown, OH. I am doing a senior exit progect on Progeria. I found a lot of information from your website and I am glad that your family and many others are out there to make others aware of this illness. All of the kids on this site are all adorable and seem to be unique in their own way. Your life is what you make of it... Enjoy and have fun. You all have little angels on your hands. If you would be willing to answer a few questions for me, regarding my senior exit project, please e-mail me at msepfox@yahoo.com. I would GREATLY appreciate it! And Ashley, you're a beautiful young lady! Don't let anyone ever tell u any different! I have a little sister that is 12, as of right now and she was born just a week or 2 before you. Maybe someday u can have a pen pal (my sister likes writing letters. hehe) Take care and God Bless! Sincerely, Heather by looking at your pictures you are fun, loving, and caring little boy. have a fun life and never give up. hi Hi I would just like to tell the people with this disorder to keep their high and don't let nobody criticze them. If you trust and believe in god everything will be ok. God we do the right thing no matter what happens Ashley, You are the cutest little girl in the world! I admire you so much! Today my class watched the tv speacial you were on when you were 5 years old and we all instantly fell in love with you. I am a freshman in highschool. If theres one thing i want you to know is that i promise you i WILL find a cure for progeria. When i saw the movie tears came to my eyes, because i take my life for granted. I dont live everyday to the fullest, which i should. Ashley, you are blessed to have a wonderful mother. You can tell she loves you so much and just by seeing that video i love you too. You are so strong and just so sweet! My class seriously fell in love with you!:) I cant explain how bad i wish i could help you and the other people who have Progeria. But trust me one day i will. Its amazing to me that such a young girl like yourself is so much stronger than i am, or anyone else i know. Ashley, You are a hero of many people. Not just because you are strong and your hanging in there, but because you seem to just love life being you! Which i think is great! Whenever i see tapes of you or pictures of you- you always have a smile on and you just seem to love and enjoy life. Ashley, god gave harder lives to stronger people and Ashley, you truly touched lifes of many people today. God Bless you. Love always, Jessica Armstrong. hello my name is daneille and my cousin was dianosed with progeria in the past year, i give everyone so much credit for being so brave and strong during these hard times hello my name is daneille and my cousin was dianosed with progeria in the past year, i give everyone so much credit for being so brave and strong during these hard times Wow. I was doing a report for school, and this is one of the best progeria websites I've ever seen. It's really informative. It's awesome that so much support is being given to people affected with this disease. This website has really showed me to live life to the fullest. Gods all bless. Ravyn Wing and the Messenger of Light I'm creating awareness for Hutchinson-Gilford Progeria Syndrome among my 8th grade catechism students in NW Florida. It's a good life lesson for them to realize the struggles that children their own age are dealing with in addition to being adolescents. I think that this is a very nice page. It's very nice that they have programs and retreats that you can go on to meet other children and familys suffering from the same thing you are and to be able to ask questions and get each other support. May God bless you all and keep you always hello! my name is kyle and i am 13 years old. i never really knew what progeria was until my class started studying genetics.all of u have touched my heart.god bless I'm 16 years old and I'm doing a report in school and after watching a program on TLC I decided to do it on this disease. I really admire all of you guys with this because you are strong and aren't afraid of what you have. And to the parents I admire you as well because I know it must be hard for you to watch your child suffer through everything. Just to let you all know your in my heart and prayers. Celiese.S. Hello. I just wanted to tell you how awesome Ashley is. My science class watched a video on Ashley because we have started cells. Ashley, your will to over come and to make sure you live life to the fullest really inspired me and a lot of my friends. You are so awesome and i think that God will help you overcome and he will help the scientist find a cure and soon. Also for you to find such a great friend,John, is just fabulous and for you to achive all you can. I hope that God will help you through and i know that he will and know that your in my prayers. Kaitlin hello. i'm sharon. i'm from holland so my english isn't that well. well a couple of days back i lookt at the televison and i so a docmentiare about the progeria syndroom. about a girl i don't remember her name anymore but when i look at that girl i that she was so sweet and very strong en she was so happy because she go to the foundation club ore something to al the cildren who's have that syndrome i have to cry when i she those children, all i wanna say to the parents is:i wish you all,all the luck off the world,i ope you can read this,i now that the english isn't that well..! i hope you send me a email back..good bye. greets sharon I caught the special on TLC I believe it was. On John, Ashley and Devon. I was unaware of Progeria until I saw that. I am a nursing student and am studying to deliver babies, seeing the special on how wonderful these children are has got me extremely interested in helping. I just want them to know that they have really touched my life. I caught the special on TLC I believe it was. On John, Ashley and Devon. I was unaware of Progeria until I saw that. I am a nursing student and am studying to deliver babies, seeing the special on how wonderful these children are has got me extremely interested in helping. I just want them to know that they have really touched my life. I caught the special on TLC I believe it was. On John, Ashley and Devon. I was unaware of Progeria until I saw that. I am a nursing student and am studying to deliver babies, seeing the special on how wonderful these children are has got me extremely interested in helping. I just want them to know that they have really touched my life. Lori and Ashley, I was unable to barely start my last letter so I will continue. My name is Britney Gagnon, I am from Maine in the U.S. and I just wanted to say that both of you are very remarkably strong people. I am studying Progeria for a Biology report on genetically passed on diseases. I have used your website for a lot of my research. It has been very helpful. :) I have seen a lot of your photos in the gallery and in away I have become very interested in learning more about the disease. Ashley, You are a very strong and beautiful person. It looks to me like you have an excellent outlook on life and enjoy every given second that you recieve in it. In a way, you taught me a lesson, and that is not to take my everyday life for granted, and even though I do not know you, thankyou for showing me a couple more skills about life. You have my best wishes and deepest prayers for the many more happy times you will come to in your life. Also, for the bad times. Always keep your head up, and know that you will get through them. You are in my thoughts, and I will never forget your story. Good Luck! Love, Britney S. Gagnon Hello..i have been looking over your website and i think that it is great! I wish the best for Ashley! Love Jillian hey. just thought i would let you know you are very brave i think what you guys are doing is great because i just had 2 do a reaserch paper in school n i was reall touched by what so many people are doing to help these kids awsome job guys and I hope you guys meet your goals Ory, your page was so cute and you sound so full of life when you sing twinkle,twinkle,little star. It made me smile. You are a great little boy and my prayers go out to you. Keep going strong! I was told about progeria from my sister, so I searched it up on Google and found this web site. I read about progeria, and now I've decided: I'm going to be doing the disorder for my school science fair. Thanks for giving me the inspiration! I feel real bad for these people. Only if there can be a cure. Hi, Ive been watching Ashley and John since the Maury Povich TV show! I saw "Old Before Their Time" and been a fan ever since. I saw both children purely by accident on TLC a couple of weeks ago and Im thrilled they are doing well. I didnot know John played drums! Im trying to find out where that reunion was. Thank you both for coming into my heart. I had to choose a topic for a report I have to do...and I remember seeing a show about children with progeria.The documentary touched me deeply and made me want to learn more about this disease, and the children affected by it. I just wanted to send my best wishes and love to all of you, you are so strong and inspiring!!! Hi, I was reading all the comments in this guest book, and I didn't had to look far and I saw a shocking and sick message from a probally sick person! Pretending to be ashley or Lori is so dumb. Just be your self. If you really feel that way, be macho enough to tell us your own name and email dress, I just think it's sick now....! Your pathetic. I'm doing a speech about progeria on my school, and I think it's so amazing that you always see the children that soffer from progeria are looking so happy!! That's really amazing, that doesnt make it good to have progeria but it make's it a bit better and I think you have a lot of currage. Well done and dont listen to people like the person that wrote stupid things in the geust book... dont even pay attention! Love from Ingrid i watched a show about chhildren with progeria and it touched my so much, that i am now going to medical school to research about it and i deeply wish to find a cure. no child should have their life taken away, never getting to experiance the wonderful things. 13 years of life isn't enough. Casey i used your cool website to do my speech on kids with progeris i would just lke to say that all these children are beautiful gifts from god! I am 17 years old,I watched a t.v documentary and i was able to learn about Progeria and kids affected by Progeria. Through this show i met Ashley, John, and Devin. These kids had such great spirit and i was inspired by them. I came on this site looking to learn more and to try and pass on the message that i wish any child with progeria well. I send my prayers to all. God Bless. I am doing my speech on this desease and no one knows what it is and they all thought it was a country and i am putting it together right know and i think that it is a interesting topic, and that everyone world wide should know about it. Off all the children that were on TLC's program the other night, Ashley touched me the most. Maybe because I related to her mom the closest, but probably because of her spirit. I was just in southern alberta (lethbridge) last month visiting family. I wish I'd known of Ashley then, for I would love to meet and spend a little time with her. She makes a person realize just how much life is worth living. Thank you darling Ashley, for being the blessing and the dear sweet soul that you are. You've made an impact on me that words cannot describe, and I send you love and light from afar. Love and hugs, Shawna Ashley, I saw your story on cable last night. It touched me so much. I wish you continued success in your life. You are a very brave girl and for that I applaud you. You are a hero. Felicia Lowe hey guys, i saw a show on tv that was all about kids with progeria, and i thought it was so cool how they all led a pretty normal life, and did things like evryone else. I want to be a nurse so Progeria is really interesting to me, the show wanted to make me find out more about it! When I look at these beautiful children I see the light of God shining through them. God bless these children who are gifts from God! Hey everyone! I'm Laura McCann. Since my mom was diagnosed with breast cancer I wanted to find a cure for something that was very important to me. Well last night I couldn't get to sleep because I have been really sick lately and I saw a show about progeria on TLC. I heard about John, Ashly, and Devin. After that I couldn't help but wonder what I could do. Not only am I going to start donating to your charity from my monthly allowance, but I'm goin to become a docter and try my hardest to find a cure to progeria. I'd love to meet Ashly, Hayley, John, or Devin sometime, talk online or e-mail eachother. I'd love to hear from them! Laura McCann, 12 Good Luck! Like many others, I watched the TLC Medical Miracles show last night. It was so touching to see the children and families and all that they have gone through. I had never heard of the disease before, and wrote it down to do some research on the internet, and I came upon your website. Just like everyone else, I have to say, I admire your courage and strength. I cried watching the show, and I can only think of all the tears you have shed. Best of luck in the future, I'll continueu to visit this site for updates. YOu are wonderful people! My mom and I stayed up late last night watching the TLC channel (Growing up Old segment), my heart goes out to the families, and children all over the world. I am amazed on the inspiration that the kids have, I could not hold back my tears for it was a touching segment. I told my mom that I have a new job and it is to inform family, friends, and all about Progeria. A heartfelt thank you to Ashley and John (Tackitt), those two youngins' made me smile back at life,and also open my eyes. I am going to keep my Miracle Minutes going for the Progeria Foundation, ok well I have a mission to start. I will be in touch Last night on The Learning Channel I watched a show about Progeria. I have a son that is Bipolar and I have to put up with temper tantrums every morning and every night. As I sat there and watched that show about the three children, I started crying. I can't stop thinking about the parents and what they must be going through emotionally. My heart and love and prayers go out to each and every individual with Progeria. I, too, saw the Discovery special last night on Progeria. Ashley immediately touched my heart! She is living her life as an example for all of us to follow! I found your website and I must say, as warming as the story was last night, what touched me the most was reading Lori's testimony. Praise the Lord!! Ashley, you and your mom will be in my prayers! God is certainly using you!! Thank you for sharing your story! WOW! What tremendous lessons we may learn if only we dare to apply their faith and courage in our own lives! Thank you for sharing your stories and amazing spirits with the world! God Speed! Melissa Hi Ashley, I saw the special last nite on the Discovery Channel about Progeria. I wanted to tell you how much you have inspired me...you are exactly the type of person I would like to be - strong, brave, happy, full of life. I admire your courage, your wisdom beyond your years, the joy that fills your entire being, your faith. You have changed the way I view my life, and for that i am profoundly grateful. Love, Lauren You will think I am a big wuss! I watched the Discovery program tonight since not being able to sleep due to chronic pain. I have numerous medical problems and after watching this moving episode, I am wondering what I worry about! I was in tears often through the program. You are all so inspirational!! I had actually heard of this illness when I was a patient at a Children's Hospital many years ago and I was grateful that a program was done to increase public awareness of this illness. I am so thrilled to hear progress is made with the research! I recently had a neighbour diagnosed with a terminal illness and after overhearing a health care professional refer to him as "terminal", he said, "arn't we all?" I would add it is just that some if us have to cram so much more in such a small period of time. Thank you so much for sharing your lives with us and my thoughts are with you!! Watching all the programs about children with Progeria, visiting the websites, etc.... it shows me that nothing I have gone through in life even compares! There may have been some bad times, but I still have no room to complain. These children remind me just what life is all about! What is most important! And it NEVER ceases to amaze me at just how strong they are! They have such a zest for life. And the parents... gosh... they are so strong also. They are true heroes in my book because not every parent could live with & endure, as these parents do/have! I thank God everyday for allowing me to have two healthy children, who are both now in college. I am a very lucky parent!! But, I also ask him to please watch over these children and their families too. I ask that he please help give these children the strength to hang on for as long as they can, in the hopes a cure can be found. May God Be With You Always! i fell in love with ashley she is a inredible child God Bless Lori & Ashley: like so many others, i saw your story on TLC. from this day forward you two are forever in my heart and thoughts. i think we could all learn a lot from the incredible strength that ashley has. she is a true gift to this world. I recently saw a program on television about progeria. I have never heard of this disease before this. It is really great to see such young children with such great spirits. It is very much inspiring. I really want to do as much as I can to help. Like many others I watched the TLC program on progeria and was in complete amazement on what these children go through in life. This is a heart breaking situation for everyone involved, and our thoughts & prayers are with you all. - Emily Jamotta; student at Texas Tech University Hi Ashley! I just saw you and John Devon on TLC, and I have to say how adorable I think you all are. Until tonight, I had never heard of Progeria, but I'm glad I've had the opportunity to hear your story. You guys are truly inspiring. God bless you all :) You are all truly amazing kids and families! I love how full of life and spirit you are. The rest of us could learn a few lessons from you on how to live life to the fullest. Thank you for being great! hi ashley, i saw you on tv tonight. i just think you are so so soooo adorable!!! you and john both. i think you two are the perfect match. haha. well, i have to go to bed now because it is 11:34 at night where i am. i hope you had a happy new year's. bunches of love, sarah motes 12 years old I admire you Ashley - for your strength, compassion, and bright outlook. I just saw the program on TLC tonight and there are really no words to express how I am impressed with both the strength and class that your daughter as well as the other kids displayed in the face of such adversity. Adversity that would be devastating to anyone and yet they give hope and encouragement to others. You can be very proud of your daughter and the way that she has touched my heart as well no doubt the hearts of many others. I wish I could do more but all I can say is that you both are in my thoughts and I wish you continued strength as you go through this together. Thoughts to you both ~ Judy Ashley & Lori, I saw them on TLC and Ashley u are athe cutest girl, no matter what remember there is SOMEBODY THAT LOVES U AND IS GOD. HE TAKE CARE OF YOU EVERY MINUTE. LORI U ARE A WONDERFUL MOM. GOD BLESS YOU FAMILY AND EVERYBODY THAT HAS PROGERIA> I have just watched an episode of Medical Mysteries, which talked about progiera. I had never heard about such a disease exept in the movie Jack. I am fasinated but at the same time heart broken that such a thing could happen to a child. But it is beautiful that they keep hope and run such a normal life. Just saw the beautiful show on TLC featuring Ashley, John, and the six year old little boy. (sorry i forgot his name right now.) You are all amazing children, so bright like a star, each and every one of you. Truly amazing. Your parents are so wonderful too. Just wanted you to know I was thinking of you all tonight...Love, Deana :) I watched the show on TLC tonight and was really taken by your stories. God bless you beautiful children!You are all heros! I recently watched a documentary on the Discovery Channel about a young girl, just 2 years old, and plagued by Progeria. My heart and prayers go out to each child and their family's that have to deal with this! You are all in my thoughts and prayers! Though I may never know what it is like to experience what you all go through, its through wonderful children like you that inspire me to be my best! May God be with all of you! I had seen a documentary about children who have progeria. It almost made me cry because these children had to live with this condition that isn't their fault. Then I noticed that every children had something that not every one has: confidence, superiority, & the fact that they try to live life to its fullest. I'm only 14 and I am sometimes I feel like there is nothing to live for, but then I see progeria individuals who are lucky and happy to even see their teens. That is great that they can have so much fun and experience activities that other children with conditions cannot. That is truly fantastic! I would just like to take a minute to say to all of the children keep your heads held high and keep hope and faith. You all are VERY beautiful people and have so much going for you. Like I said keep your head up and NEVER, EVER give up. I love each and everyone of you!!!! I saw a show on progeria. I hope they find a cure soon. I will pray for every one with progeria. You are a VERY VERY cute little girl. GOD BLESS YOU I'm doing a school project on Progeria and I saw your page, you are so cute! I'm sorry you have to live life this way!!! JUst remember that god has a plan for everyone, even you!!!I love you!! My heart goes out to all the children with this disease. I watched the documentary "To Young to Be Old" on Discovery last night with little Fleur who was my daughters age at the time she died. I could not imagine the loss of my daughter right now. The show made me relize how lucky I am. Some times I get frustrated with my daughters attitude but after I saw the show last night I realized I have nothing to be frustrated about. I would like to do anything I can for these children. Let me know if there is anything I can do. Donation for a cure, time,a friend. Anything I can do. I will pray for a cure for this disease every night until one is found. All my love Jennifer Platel Kansas USA I am a nursing student doing a research paper. I picked Progeria because it sadens my to know that there are childern who are hurting like these kids are and parents who have to live knowing that there is not much that they can do for their children. I hope that my paper will do everyone justice. Always, Libby I was watching the discovery health channel and saw these kids that looked quite different and decided to check out a website to find more information on it. I am praying and hoping that some day soon a cure will be found for this disease Hi, I was looking for information about progeria because I have to do a project at school and I could pick the subject myself so I piched Progeria because eversince I saw a program about progeria I got interested and I really want to help in every way I can. Greets... -xxx- Hello my name is Markeshia and I am a Senior in high school. My class is doing seperate projects on genetic diseases and I pick progeria. All of my life I've wanted to be in the medical field. Now, after hearing the stories of some children with this disease I've found that when I enrole in college I would like to major in genetics to help people n their position. I wish you the best of luck. Love, Markeshia hey! i'm 15 and i really want to help children with progeria.. ever since i first heard of the disease on a programme i watched..it touched my heard so much.. x x x x i was doing some research for a school paper and found this site. it has helped me out a lot. i remember seeing you both on a tv show. i thought to myself of how much ashley seemed to be a very happy, and sweet girl. it seems like she sees herself as not having the disease. she seems like she lives a very normal life. i cant believe how remarkable she is. keep continuing to smile.:) I have been interested in Progeria for many years now, since first watching the Maury Povich show. To this day I have stayed interested and view your sites regularly. THis are the most beautiful children I have ever seen. I find complete inspiration in every parent and child that is living with this every day. Please know that you have blessed my life and know how very special you are to everyone! I am writing a paper for my Biology class on Progeria. I just wanted to say God Bless you all with this disease and your loved ones. I will be praying for a cure. Keep Smiling :) Thank you for the chance to write in this guest book, I am very interested in Progeria as my son Chris suffered from it for 20.5 years. Regards Murray Hello Lori and Ashley! I've been studying genetics for a couple of years now. My high school is actaully one of the only public schools in Canada that offers a course on genetics. I'm currently doing a project on the disorder for that class. As you probably know, in April of 2003 they found the location for Progeria on the human genome, and that information can and will definately help with finding a treatment for the disease and ultimately a cure. I wish you and Ashely both the best of luck. -Melissa p.s. the picture with Ashely and the hampster is absolutely adorable! As a parent of a child with a handicap, I would like to say how brave these children are. I have been around alot of kids with disabilities and have never met more warm, kind, loving children. They take nothing and nobody for granted. My heart goes out to you and yours. Keep smiling, reach for the stars and always know that you are loved. ive only found out about progeria within the last couple of years but already i realise how important it is to find more research and help these families affected by this disease. i have, and will, continue to spread word about this disease, i have told my friends, teachers, class-mates in hope more people will be aware of Progeria. to the children, and their families affected by progeria, may god be with all of you and i hope you realise you've got support from all around the world, including me. Hi my name is marie, I have been researching what Progeria is. I first knew what it was by watching a show on television. Now i am doing a school report about it. I would like to tell everychild who has this disease that I am praying for all of you this website was very helpful, thank you, i'm doing a project on progeria for school, and i need a lot of info to write a 3 page report. i picked Progeria because i think it's a very interesting genetic disease/disorder to study, and i saw a show about it on TV, i think these children are awesome and totally cute!! i have learned a lot about this disease and i saw the documentary and it was very moving. The little girl Ashley is soo cute and an awesome kid, she's like anyother kid her age i know. well thanks again! xoxo ~*~SaMaNtHa~*~ i think these kids are really cute.my friend crystal says that she feels really bad for the children who have the disease do children with progeria live a normal life or are they limited to things they can due I have just found your website and am SO impressed by what I've read!! God bless all the adults who are making this possible for these remarkable children. Are there plans for the other children/families affected by this disorder to be added on this site? I sure hope so. I hope you will (if you haven't already) publicize this website widely. The only way I know about it is that I received an e-mail from Lori in response to one I sent some time back. God bless - love you all!!! Pam Ce site est très bien, on nous explique de très bonne chose bonne continuation Just this past year I watched the Discovery channel show on Fleur Tobutt and the struggles of families with Progeria children. It moved me deeply and since I decided to write a paper on the disorder for science class. Through the research I was able to get a small peek into these children's lives and it pains me to read of their troubles. But even greater than their troubles is their triumphs. With increased public awareness, the discovery of the gene mutation that causes it, and the strength of those affected by it there is much to be happy about. God bless the children and their families. You are in my prayers. Hi! I´ve seen the documentary about Progeria and I was very moved by it. Ashley is a great kid and you are a very strong person! I almost don´t know what to say. Take care of you and A HAPPY NEW YEAR! Hugs from Sweden. Hi there!! I watched your documentary on the knowledge network earlier this week & was moved by your story. Haven't been able to stop thinking about it as it tore at my heart. Ashley is unbelievable "courageous" so upbeat & happy what a joy she must be to you & your spirits. She's so sweet & loveable I just want to give her a big hug. You Lori are an incredibly patient & loving mother you are amazing. I can't imagine what some days are like. You & Ashley are inspiration to us all & really know the meaning of living live to the fulliest. What wonderful parents you have too!!So keep smiling God Bless,Happy Holidays to you all!! You will be in our thoughts & prayers! Love Your Friend Jodie xo I watched a taped documentary on The Discovery Channel taped in 1999 today. It really touched me, and I will never forget what I learned. I wish I could meet Ashley because she seems like a talented, smart girl, and very charming. I especially like the picture they showed with Ashley and John dancing. It really showed they're just normal people. I watched the documentary on Ashley and her family last night and today I could not get her out of my head. I just had to search for her on the internet to find out how she is doing today. I was incredibly moved by her story and thankful that Ashley and her family put it out for other people to see and learn from. Thank you. I watched your story unfold on the Knowledge Network last night and I was moved beyond tears, you are a courageous duo, what a great kid! Be proud, be very proud of both Ash and yourself. I certainly was impressed by both of your parents as well. Forge ahead! Hello Ashley and Lori! I just watched a TV program about you and your family and was deeply moved by your story. Seeing sweet, beautiful Ashley so happy,loving and courageous made me want reach out and hug her. I can see she is a special gift, bestowed upon your family by God. And your family is just a special a gift to her. May my heartfelt well wishes be felt by you and your family. All of you are truly amazing and an inspiration to me. All the very best this holiday season and in the coming New Year! Love and Light...EVA Hello, I just watched the special on CBC about Ashley and the other children who suffer from progeria. It absolutely tore my heart out, but at the same time made me smile seeing the children making the best of their situations. To the children and families, be strong and take care. Enjoy the time you have to the fullest! Your friend, Mark I just finished watching the documentary about ashley and lori about 2 minutes ago and right away i had to come online to find out more about you two. All I can say is that you both are so lucky to have each other. Your story is so amazing and truly inspiring to hear. Ashley you are such a special girl who clearly has given more love than most people do in their entire life time. You are such an amazing and beautiful little girl!xox And Lori, you are such an amazing and special mommy. Words cannot express what i want to say to you right now... both of you and your entire family radiate nothing but love and the celebration of life. Thank you so much for sharing our special and important story with me. Merry Christmas to you all, Love jenny charlesworth This is a very awesome story of the struggles that gave way to a triumph overcoming your lovely daughters limitations and illness. It must be so encouraging to find out that the genome causing progeria has been isolated.The road to treatment and medications is paved with such discoveries.The lord is increasing my own awareness to human adversities all around me further working in my life to show me why bad things happen to good people(good meaning God's)? In your & Ashley's documentary there is a reference to the hopelessness of diagnosis or treatments when you first became aware of what you were dealing with, I can't imagine how frustrating it must have been for Canada's first case of progeria to befall to such a brave independant young lady as yourself( I just watched your movie on TVO and God reminded me that I was in Lethbridge at the time around 97 -99 and remembered briefly seeing a beautiful flower of a little girl who I percieved to be wiser than her years- Ashley of course ) God Bless, and Merry Christmas to your family, I shall include you & yours in my prayers Ashley, Merry Christmas and peace be with you! Dear Lori and Ashley...just watched the program on TVO this weekend..God Bless you both..you are both very strong women...I am starting up a charity in Ontario to use dogs as visitation and therapy plus donate pups to children through various foundations...would Ashley like a Golden Retriever puppy?...Don French Merry Christmas and a happy new year. Be happy everyday. Hello Ashley & Lori! My name is Anna and I watched TVOntario documentary today and I've learned alot about Progeria. Ashley is so beautiful, courageous, bright and the sweetest little girl ever. I believe that god will always watch over you & Ashley, and you have done such a great job raising Ashley. God bless the both of you. Ashley has touched my heart greatly, she is a beautiful girl. I also checked out your website and you guys had beautiful pictures. Keep smiling and thank you so much for sharing such a beautiful story. :) This guestion is very important to my future! Please, answer me. Have lab's diagnostic criteria for cholesterin and bones' pat fot Hutchinson's progeria? Thank's veru much Hi! I'm a 16 year old AmerAsian living in Japan. I was looking through some videos my mom recorded earlier this year and found one on Ashley and I was very interested. Watching her, how happy she was encouraged me. It's amazing how she's so positive and I thought I wished I could be more like her. I think we need more people like that in the world today. She truly is Beautiful inside and out. Her mother, Lori did an amazing job raising her. In the future I want to be a person who talks to all kinds of kids. Kids with Progeria and Williams Syndrome etc... Those kids really make me feel happy and I want to be part of their lives and want them to be part of mine. Thank you for such a beautiful homepage and keep up the good work... Luv, JAC Hi again to Ashley and Lori..I am so happy you are enjoying your new home. Sounds like Ashley is having fun..thats great. Well I did a paper on progeria and got it back with 98% mark your guy's website helped me a lot thanks a lot. i took a application form off of the proger research website and filled it out. I am hoping to get some time to write to you both so that i can become a member on here and hopefully here back from you guys soon...i still am very happy to just have the privledge of reading about what is going on with your family.. ihope everything is going well and i hope to hear form you soon...thanks a lot miranda:) Man,you guys are tough! You don't realize how easy others have life until you meet someone with down syndrome or progeria. You guys never cease to amaze me with your easygoingness and smiles.I'm only sixteen,have Spina Bifida(a neural-tube defect)have had 3 surgeries(the most recent was saturday the 6th of December but I don't have it near as bad as you guys(although you probably don't feel sorry for yourself.)Keep Smiling! P.S. As the great Tigger said"T.T.F.N. (Ta Ta For Now) Hi my name is Alessandra i'm 16 years old and i'm from Venezuela, the past weekend i saw a programm of progeria on the tv, and i wanted to check it out on the internet, i find this page very interesting, when i grow up i would like to be a doctor and believe me i will find something to help you guys!! i think that all this children are very very sweet, they look so happy on the photos, i think that they are the example that we have to follow to the future. Merry christmas to all of you! i'm praying for you!!Take care! if you have more information please send it to my e-mail. Thanks! Hello! We just want to wish you and your family a merry christmas and a happy new year from us in Sweden! God jul och gott nytt år ! hare guld ! // Malin och Julia I'm am 13 and from Michigan, and last weekend happened to be watching a show with my mom on Progeria. So afterwards I decided to check it out on the internet and got here! I looked at all the awesome pics and thought they were so cool! I would love to recieve any e-mails. I'm hoping for a lot of money for Christmas, because I'm planning on donating a majority of it towards a Progeria program! I hope that everyone has a great holiday season and hopefully I'll hear from you guys! Your Pictures were truly touching. I had to be a part of a research project on Progeria for my biology class not too long ago. I want to tell you how special you are to go through what you go through, Both of you Mom and Ashley. Ashley you are so beautiful. Thank you for having a website to enlighten us all. Your story is amazing. The picture on the beginning of the website shows how much spunk that Ashley has. She looks happy. Though you had a tough time from the start (I am only a year younger than you when you had your daughter and would never be able to handle a child, let alone one with a genetic disorder) you were able to overcome and try to make things for the best. I hope that Ashley will be able to live her life to the very fullest no matter how fast her body decides to age. Yours Truely, Caitlin Rhyne I just wanted to say how completely touched i am by your story. (Ashley & Lori)...I saw the Discovery show in Biology. Ashley is so beautiful, and the sweetest little girl ever. Lori you have done such a great job raising her, and i know it isnt easy. U have to have so much patients and not only that but to see your child hurting every day inside and sometimes out. God bless the both of you. I was very confused on what i wanted to do with my life, until i learned about Ashley, and i figured out i would like to study nursing in Pediatrics. Thats how much ashley has touched my heart. Lori when you get a chance i would appreciate it if you would email me, i would like to get to know the 2 of you a little better. God bless. Alicia :) I love the website that you have here and you are very pretty. I will be back you have a lot of information that I can use in studies and so on. Keep up the great work and keep a smile in your heart. God Bless~ To all the angels and their families: I saw the program about progeria on Discovery Health early this morning. I am truly touched by your stories. I hope you know that there are so many people in this world who are praying for you everyday! Keep your heads high and know that I'm praying for you all! Love, Erin Don't ever give up on yourself or God hi I think you all are little angels and I am thinkin of U all a lot :) life is precious and a gift from God, no matter what the length of our days. God bless all of you, and please continue to look to Jesus for He is your Source. There was a wonderfully informative program on (I think) Discovery Health Channel a week or so ago. I am in awe of the children afflicted with the disease; of their parent and siblings and friends; and everyone else who helps to make these kids' lives as normal and enjoyable as possible; and surround them with support and love. I would like to help too...can any suggestions be given? Please contact me at my email listed above. Thank You and God Bless You. I have been checking up on ya'll for over a year now. I am doing a second research paper over progeria because I have found it so interesting. I am glad all is well. hi there my name is miranda klassen and i am 18 years old. I have been researching progeria now for the last 2 months because of your story i got in the mail from a church. I always check up on how you and your daughter are doing..she sounds like she is really enjoying her new home thats great. right now I am taking the certified education assistant course to work with children with special needs it is a great course and i am learning a lot. Since I found out about progeria and you two i have really wanted to help in some way. I hope you can email me if you have time that would be awsome. thanks for everything. You are always in my prayers. God bless you. all my prays go out to the families of those who has a child suffering from progeria i hpe and pray there will be a cure for this disease just keep your head up because you all are gods little angels hi i jist want to tell you the pic of ashley and that other boy dancing to touhter dose not work and one other pic dose not work you site has asowm pic if you and ashely want to e-mail me i put mt e-mail at the top of the page and if you want you can send me some pics i am rhoda potters sister if you want to know [wrhit on nov.19 and sory for mistakes] LOVE BETHANY LILLIAN POTTER I was so touched after seeing the primetime special and now I am doing a report on the disease for my wellness class in college and I hope it will touch someone elses heart and enoucourage them to inform others to pray for the children affected and for the day when a cure will be discovered. you [children] are a special gift from God and my prayers are with you! God bless you both, may your lives be filled with nothing but happiness. Hey we are doing a project on the kids who have progeria and we feel really bad....GODBLESS I just wanted you to know that you are a insperation to all and my god bless you in your time of need hugs and wishes Danielle Remeber... If god takes you to it.. he will help you get through it!........ So dont be afraid to do something and dont be afraid of death! Yer so what Were all gonna die!! live before you freek your self out and ant see the point in living!!! Trust me! you think like that you can get through anything! So do it!! God bless x I just want to say "HI" To Ashley and Lori Hegi I hope you makeing the best out of it! I have thought alot about to you! love katie This is an exelent site! it really helped me understand more about Progeria. I am doin a speach in english about progera in a couple of days so i can get more people to understand as well... Keep upt he good work and God Bless all you wonderful people out there helping those little kids with this terrible disorder! x x x I am so glad i found out about this program and i would love to find out more on progeria if it is possible and i would also love to volenteer if there was any way any way at all . I am a 17 year old junior at Edinburg High School and i am in a class called Allied Health and when i saw a show on progeria it made me want to learn more about it. If you have anymore info that could help me on were i could help around here please email me and let me know. Thank You so much Hi there! My name is Maggie. I was one of the lucky few who survived Acute Leukaemia. Im not an angel of god or stronger then anyone else. I just learned something most people never do. I learned how to live. When the docters first tell you that your going to die, thats all you think about. Im going to die. Im sick and Im going to die. I dont want to die! Im scared! Im too young, why me, is it going to hurt, what is mom going to do when Im gone? I wonder what gods like? My mom got scared. Really scared. I was checked into the hospital for chemo, thats what they do when you have cancer. It feels strange and it kinda hurts. They stick a needle in your arm and pump you full of chemicals that make you dizzy. The best part, is when you go to brush your hair and it looks like your shedding. It comes out in clumps, intell you get so frustrated with how funny you look that you shave your head just so you dont have to watch it fall out anymore. I saw your daughters picture. I think bald heads add character. They clear a pathway for your face, so your beautiful smile can shine through and show everyone that your still alive. Im taking up too much space, so Im gonna say what I need to then get...They will tell you that there's no hope. Dont listen. Thats the key. The other key, is to not be afraid of death. Accept that there is a good chance it will happen, then let it go. Live your life as much as you can as if you never found out you were going to die. Do one thing every day that makes you scream with laughter. Make sure you tell everyone how much you love them and dont be afraid to do something because the Docter says its bad for you. If you want to, you do it and docters be damned. I mean hey, according to them your just gonna die anyhow so why should it matter what you do? You know what the cure for death is? LIFE. So what if you only have a few years/months/weeks to live, the point is you have them so get out there and LIVE. Oh and tell your parents you want a pet. Animals are awesome and they give you someone to talk to when your scared to go to your mom cause you dont want her to cry again.My Jack Russell Terrier Lucky is my best freind and he's a certifide therapy dog so he can come into the hospital with me. For your mom...Tell her to hold your hand. Then say, see how perfect my hand is when you hold it? It fits even better in gods hand and he loves me just as much as you do. Trust me, it'll make her cry and it'll help. Well, thats it. I'll stop by this page every now and then to see how your doing. I hope you have a wonderfull life and if by chance you do make it further then I did, tell god Maggie says you have a cute face so he better take good care of you and that if he wants me he's gonna have to try harder next time. Trust me, he'll find that funny. When you look into his eyes, you'll understand why Im not afraid of death. How can anyone be afraid of something with someone so beautiful waiting for them at the end of it? Laugh, Maggie... It has been a while since I've been to your site. I am SO unbelievably happy to hear that Ashley is still doing very well! 12 years old already? And still absolutely adorable as well!!! i really feel sory for all the kids and grownup that have this disease if there is any thing i can do please let me know Hello, I am a science teacher in Evart, Michigan. My students are studying genetics and I felt it necessary to make my students aware of progeria. We were able to see "Sam's" story on CBS. My students kept asking questions like "How are the children with progeria doing?" "Is there anything we can do to help?" So I have embarked on educating myself about progeria so that I can better communicate and educate my students. I am touched deeply as I read and learn about each of you children. My heart swells with love for you all. Thank you for sharing your stories. I promise to be a prayer warrior for you. I also promise to not only educate my students but try and build love and compassion in their hearts for each of you. We can change this world one heart at a time. I fully believe that. God bless you all! Carrie Bender I'm happy to see that there are many people who are devoting their time to this rare, yet awful disease. I hope that in the future I can also contribute in some way, and I hope to be able to work intensively in finding a cure through laboratory work and the like. Lovely pictures, Ashley seems to have quite a charismatic personality, and lively spirit. Much love and take care! Hi my name is Kristin & I am 16 yrs.old. I started viewing this website for a research project for school. I became so astounded by these "little" miracles & would love to help in some way. Im great with children(I have many younger cousins including 3-yr-old triplets & a nephew who's 3 mos. old)& I would love to learn more about Progeria & donate my time to these amazing children who have inspired me. I hope that a cure is found soon for Progeria. I hope to meet a child with Progeria one day so that I can tell them how much I care. A million kisses and hugs to all of you beautiful kids out there diagnosed with progeria. Last night I watched a documentary about a little girl called Fleur. She was diagnosed with progeria. Until yesterday I was unsure what to write about for my major essay in english, but now I know. I want to write about progeria. You guys have really tuched my heart! Keep up that beautiful smile of yours! You guys are the best! Love,kiss and miss, Caroline! Yesterday night i watched a videotape regarding a little girl called Fleur from UK and did not know about this terrible disease.In the film there was also Ashley during a meeting you had in USA Hello! I wrote to you about 4 years ago. I had a schoolwork about Progeria. And then i saw a tv- progam about a girl Fluer, who had Progeria to. She lived in England, but now she is dead, iam so sorry for that. So i got to think of you, you and Ashley. I don´t know but i think that children white Progeria is so full of life. The are so qiute i think. I hope that Ashley and you are fine. And i wish you all the best. Love Nathalie sorry for the confusion. I kept hitting the return button to go down. I first read about you in a book I got from mail. I am 18 years old and Iam taking the certified education assistant program to work with children with special needs. We were assigned to do projects on diseases/disorders and ever since I read about your little girl I wanted to learn more about progeria. I think it is great you have your own web site it helped me out a lot. I am so happy you found God because there is no point to life without him because you and your daughter have a purpose in life and with God you will fulfill that purpose and have a wonderful life together anxious for when you both get to go home(heaven with the lord) Hi i just want to say that i relly think you did a great job with this web site, now i know really know what Progeria means and i hope there is away that I can help children with Progeria if I mabey donate money or something..just so i can help. il would be glad if somebody could send me more information about Progeria Best whises/ Emma God bless the lives of these children! Hey Ashley, you are such a beautiful girl! I would like to get to know you more especially since your in the area! I recently watched a show about progeria, and everyone who was on it was living life to the fullest and enjoying every minute of it....I respect that a lot and to meet or even just talk to someone with such joy in their lives would be a blessing. Wow, this website is very informing. Thank you so much for creating this site for the public to view. I wish both of you the best of luck, you are in my prayers always. Love Alessa:) You and your daughter have touched my heart in everyway. She is a beautiful girl!!!! My thoughts and prayers are with the both of you. thank you for sharing some daily life comments and pictures. i recently viewed the primetime segment about progeria. i had heard of this syndrome some time ago, but this was the first time i saw a program about it. no doubt finding the faulty gene gives hope to children and their loved ones. i will keep myself informed and tell my friends about this site and hope that they will aquire understanding and compassion for those who are enduring this disease. many times people wonder why God allows such terrible things to happen to innocent people. i would be interested in knowing how you answer such questions. thanks again, elke My prayers are with you both. Thanks for sharing your life with all readers out there. That precious child is blessed to have such a great mother. I love this website on progeria. Thanks for all the informtion on it. Hi Gals! I also just watched the Primetime special tonight with Sam...what a guy! I am an occupational therapist, and I have a strong interest in working with kids. So I decided to come online, and see what other info I could find, and I came across your website! Well done, it has lots of info and some great pictures! How wonderful for me to be able to come online and look into the brave and courageous lives of you and Ashley, and learn so much about a family I don't even know! From watching Primetime, and other shows that explored the lives of children with Progeria and seeing their amazing spunk and joy for life, I would love to someday have the opportunity to work with a child with progeria! I wish you both the best of luck, and Ashley I am sure from these pictures that you also have that special spunk and joy for live, So Keep Living it up kiddo! I also watched the special on PrimeTime Live tonight, and found myself counting my blessings. We can learn alot about Ashley and other little angels just like her. I'm praying for a speedy cure, and continued health for Ashley and all the other children suffering from Progeria. Hi. I was just watching the Prime Time Special and I found your website while looking up information about progeria. I am currently a freshman at the University of Pittsburgh School of Medicine and I currently just got a job working at Children's Hospital. I would like to one day hopefully help in finding a cure or a treatment for progeria. Ashley, hey girl, I recently learned in my biology class about you and progeria. You are a very special girl and I wish you the best of luck. I will always keep you in my heart. Hi just like to say well done on this website its very imformative and touching.I have been asked to do a thesis in school on something to do with a health condition and i have decided to do it on Progeria.All of the kids with it are so loveable and brave.I wish them every sucess in the future michelle xxx im doing an assignment on this and its really sad 2 see people like this.. thanks you for the information on this issue. As another one who watched the Discovery programme, and having a child of my own with a rare genetic disorder, I was deeply moved and inspired by the courage of the children and families affected by Progeria. Ashley and John, you are superstars. xxx I also watched that discovery channel program tonight and it inspired me to search for more information online. I have to say how amazing and special these kids are, I think everyone could learn a lot from them. And to Ashley I think you're great and very brave, keep smiling. Just a very quick comment to say that I watched the Discovery program extraordinary people this evening and although the program was of course about one special little girl Hayley Okines. I just wanted to say that the parents of these remarkable children are just as special. God bless you all. I am here researching progeria for school and I am very touched by all of the children on this page and the amount of information rgar us on here! Thank you! I have just started to learn a lot about Hutchinson Gilford Progeria for a class project. I am happy to see an organization that deals with helping the parents and children with coping, financial needs, emotional needs, and other stressors. As a future social worker I appreciate what your organization does for children and families affected by this rare disease. I love the new website and the updates. Keep em coming! :-) Love, Amy Keep on going strong and don't you ever give up. You are an inspiration to me and to everyone and God is smiling down on you. You truly are angels and will never be forgotten, even after your body passes. You have a strong mind and a even stronger spirit. Stay the way you are and you will be rewarded in the end!!! I love the page. It is extremely informative and the pictures are adorable. I am praying for each of you! And I am doing reports to inform my class and our town about your disease and how we can all be winners in helping you get better! Keep smiling. You have been an inspiration to me!! Thank you. I am a Junior in high school and I came across your website after my biology class was assigned to research a genetic disease. I have to say that I was very impressed with the amount of information on your website but also with Ashley herself. She seems to be a very brave, lively girl and my thoughts and prayers go out to her. i am doin Progeria for Science Fair and i first heard about it on Maury and i just wanted to know if there is anyone that i can talk to that has this or that knows about this who can help me with my Science Fair project!!! thank you very much ~Lizzy hello!my name is sophie and I am living in sweden.I like your pages very much, I think that it is very importent to give every human a look for this beautiful children.I really want to give all my love to the children, and R.I.P Clinton, Lukasz, Mariluz, Rachel, Svenja, Andrew, Jonathan, Ngoc, Joscha, Stanislaw, Jaun, Sabrina, Loana, Millailo, Glendis, Fleur, Christoper, Nigel, Susana Gode Bless you all. love sophie MY name is Amanda. I am a Senior at Waller high school and I am doing a project on Progeria, which got me really instersted in helping, so if there are any more "ride for progeria" I would really like to ride with everyone. Thanks. SMILE, BE HAPPY!!!!!! Hi Everyone I've seen the documantairy on discovery about asley and john and it really does something to me.. I really have respect for the kids and there parents!I went looking on the internet for more information and found your site and sites from others.I't really good that there is more information than before! In my eyes you are the most strong, happy, beautifull, brave people!! Keep on smiling :-D |{isses and Many hugs ¥vonne hi there , i watched a programme last nite all about john and ashleys lives and they really touched me .... just a note to say my thoughts and good wishes are always with ye .... Inspirational, courageous, heart warming, joyful, special, beautiful. Just a few of the words I think after watching the Discovery Channel program about your condition. Keep smiling :-) I would like to congratulate all of you for having the courage to go on in your everyday actions. I admire your drive and motivation to come out into the public and inform others of your disease. Your websites have been of great aid to me as I am doing a report on Progeria. I wish you the best of days to come and you'll be in my prayers. Keep reaching for the stars! Hello, You are all so amazingly strong, brave, warm, and beautiful. So small, yet so larger than life, an inspiration for mankind, you are truly angels sent from heaven. God bless you all! ps. John Tacket, you can play the drums in my band ANY time! :) /Danie Just keep going, don't let anything stand in your way. The sun will rise again. I first learned of Progeria from the discovery channel special, Old before their time. I recently had a chance to write a paper for my biology class on genetic disorders, I chose Progeria. The harsh reality of this disease has made me wish to further research this disease and led me through some courageous stories. It is possible that I will do my senior project on Progeria. You are all brave people. May God bless you and keep you, and may a cure be found soon. Hi my name is Kiara and I am 12 yrs old. One day I was watching to Health Channel and a program about Progeria came up. It is really sad that the children have very few years to live. In my eyes they are th most wonderful, playful, cheerful, and most BEAUTIFUL children I have ever seen!!!!!! May God bless you all. Love, Kiara Hai Every-one, Sorry 4 my bad englisch... This week i saw the documantry about Fleur. I am very sorry that she is not one of us anymore :(. I saw a half year ago also a documantry about a boy with progeria. Before that documantry i didn't know about progeria at all. I have cried (very loud) becouse i think it's terrible if you have that. I think you're ALL VERY STRONG PEOPLE!! And i don't have much money, otherwise i give you all my money for bether reserch and zorg (i didn't know the word in englisch). If there's anything i can do 4 you... please let me know! I'd love to write (send postcards?) Because i live in the Netherlands and thats far away from the USA/Canada. My study goes about children who haven't a normal live and have a hard time. (usualy too survive). And I wanna tell you that i live with you, and that i wanna help you, in any kind of way too make you more comfortable in this (crazy) life. I hope i get an email back from you. Don't give up!! Very very very much love, Clary (21 years) i would just like to say that you little people that live with such a hard thing too live with alway touch my heart. you have so much compassion for people in your life and give so much. you are so brave and just bring so much joy to the people aroung you. right now i am attending college in red deer, alberta and am taking a rehabilitaion threapy course...you are the wonderful people who inspired me to want to help people and to work with people like you. you bring so much joy to the world and are never without a smile. i just wanted to say keep on truckin and go after your dreams. they will come true dont let anyone stop you from doing what you want to become. they only person in your way is yourself, do what you want. BE YOURSELF. so all in all thank you for everything that you have givin to me and you all helped me to discover what i wanted to do as a profession and in my life.. I want to help. so THANK YOU Hello beautifull kids. Sorry but my english is not very good. I just want to tell you all that you are most beautifull and perfect. Jesus loves you all and one day we all meet again and than we see that we are all the same!! I wish you all good luck and much love. Till we meet again.... Love from Diana ,Holland And here's another *very* moved person. I'm 14 years old myself and I have no idea how I would ever cope with Progeria. I know I'm not aware of what life with Progeria is really like, but what I saw on the internet and on television made me realize that people with Progeria are very strong and I have respect for that. Ver much respect. I'm not a Christian (I'm a Buddhist), but I do believe in karma and I am very sure that you will have what you deserve eventually. And what you deserve is nothing but the best. When I look around me at the world, I see so many corrupted people, so many people's lives are only based on money and greed. But you all make up for all of that. You seem like incredibly pure, strong and compassionate people. I wish I could get to know such good people. That is why in my opinion you set a good example for the world, and if people would just think about life and its worth, like you all do, the world would be a much better place. Finally, I'd like to send you all the love and hope I could possibly send. It'll all be okay, because like I said before, you will eventually get what you deserve!!!! I also saw the documentary on Fleur yesterday and I was very moved. And deeply sad to learn about the loss of Fleur! My deepest sympathy for her parents and sister and I wish you all the best for the future, remember... god didn't plan for this to happen...he's just here to help us through it! I wish the other parents and children all the best and would like to give a special salute to Heather. I just visit your site and I have read that Ory is doing OK right now. Please give Ory my regards and till him I really liked the picture of him and Pluto. Goodmorning ! Yesterday I saw the documentery from Fleur and I was very impressed ! What a nice lovely little girl ! And I have great respect for her parents ! When you end up in such a position ther is nothing else to do then cope but the way they have done it : nothing but great respect. I hope that whitin time they are able to look back at a wonderful period because they have known and had such a lovely girl ! In time we are used to more ore less forget the negative things and remeber the best things I hope for them that they can and I wish them the best of luck,love and hapiness ! They are more than worth it ! Nothing more than deep respect !!!! Love Marielle Goodmorning to you all ! can sombody tell me if ther is a site on internet over the little girl Fleur tobutt from england i saw the story of Fleur Tobutt on tv can sombody tell me if thar is a site on internet about Fleur ALL OF YOU ARE VERY STRONG!! THESE PRECIOUS CHILDREN ARE TRULY ANGELS. I AM SO GRATEFUL FOR MY TWO CHILDREN JUST AS YOU ARE YOURS. MAY GOD BLESS YOU ALL. THE STORIES OF THESE COURAGEOUS KIDS MAKE ME REALIZE WHAT A GREAT THING LIFE IS. THANKS!! Dear Lori and Ashley, I saw a TV programme of you last night here in Japan, and was moved like I had never been before. You have taught me to be thankful and giving, and I wanted to send you my gratitude for that. I pray so that your life will be filled with joy. Best wishes, Jinsai I JUST SAW A PROGRAM LAST NIGHT ON TV ABOUT YOU VERY SPECIAL CHILDREN. ALWAYS BE POSITIVE AND REMEMBER, GOD NEVER MAKE MISTAKES, YOU EACH ARE HERE FOR SPECIAL REASONS.WE ARE ALL A PART OF GOD'S PLAN IN LIFE. SOME MAYBE LIKE FLOWERS, BUDED ON EARTH TO BLOOM IN HEAVEN. GOD BLESS YOU IN CHRISTIAN LOVE JEAN All of the children with progeria are very special people and I truely think you are all beautiful. =) I pray that the doctors find a cure for this disease soon. good morning to you all todaY! I come to this site every so often to catch up on what's new. I am so glad that they found the gene responsible for progeria. I have breast cancer and in a battle myself and understand the frustration you feel. But Praise God we can still be happy in our circumstances! You emmit real love, exactly what the rest of the world is craving right now. Keep on and keep praying! God Bless! Dearest Ashley and Lory, Watching the Danish television together with my brother quite a while ago, I got knowledge about you two and thereby the Progeria. And as you say, Lory, yes - somehow we all get touched! After the TV-programme my brother and I had a long talk about the issue and my brother said: I wonder if they have a web-site. Next day he searched and found the web-site and since then (I do not remember how many months ago -maybe a year!?) I have often looked into your "what´s new". So, in a way I feel that I know you a little :). Should you ask me why I do so, I do not really know the answer! I just feel a need to know: How are you doing? Is everything allright? Should anyone ask me, why I am now writing to you, I must also say, I do not really know - maybe because I feel a need also to show myself, as you so openly show yourselves on the web-site. To let you know just a little about my present life, I can tell you that my 25-years old daughter Sussie just got merried to her Brian on 2nd of August - which made me so very, very happy! (Should you wish to see a little about the wedding, you are welcome to see the wedding-web-site made on my brothers web-site. The address is www.mojosite.dk/Bryllup and my brother has promised to put in more photos when ready. If of any possible interest, you can also see a few photos of us on www.mojosite.dk. (Not that I think we should be of any special interest at all - but now that I have seen you, I also find it right that you can see who is writing to you). I take the opportunity of wishing you both LOTS OF SUNSHINE, HAPPINESS, GREAT SUCCESS AND ALL THE BEST IN LIFE! With the very best regards, Grethe Nielsen Dear Haley, I'm writing to you, because I only got to know you personally. I love your pictures. I really don't know you but I love you, your are adorable. I have four kids and five dogs! I would love to add you to the bunch but I can see Mommy and Daddy love you too much. I would like to send you a little something maybe for one of your trips. please e-mail me back with instructions how to do that. Thank you, and I will send you a picture of me, the kids and the dogs. hey ashley and lori, I am working on a project on progeria. I first heard of progeria on the TV about hayley. I would apprecitate if you could email me. thanks so much... Emy hello lori & ashley. glad to hear you are all fine and well. i recently did a project on progeria at college for my course on special needs and asked if you minded if i used infomation from your website. well,i caught the attention of a lot of people who had never even heard of progeria. thanks to your help i passed my course and i hope i created some awareness of the work you and others with progeria do . although my course has finished for the time being i will continue to show an interest in your website. take care, marianne Hi, my friend just showed me your site and its amazing. Lori, your little girl is so adorable and i'm so glad my friend showed me this. Your courage is inspirational and i'm glad that Ashley has a mother like you. To Ashley i hope you've had a great summer and are looking forward to a brand new year @ school. have fun and the best of luck . Love Anita Hi my name is Melissa and I'm 15 years old. Yesterday I just watched the show about Ashley, Lori and her mom and dad. It's usually impossible to get my family to sit down and watch the same thing on TV, but this time I had no trouble at all and at the end everyone was crying. It was so inspirational and makes me think that Lori, you are so blessed to have a gorgeous angel like Ashley as a daughter!! She is so adorable and I hope she is doing well.She's too funny!! I wanted all my friends to see what a cutie she is so I told them to go on this site and one of my friends got estatic and said "Oh my goodness, can I adopt her?" I had to tell her she had a great mom and she was really bummed. Well anyways that would be great if you could email me back, and have a great rest of summer Lori and Ashley!!! Hello! I am a 17 year old girl living in Barrie Ontario. I have visited your site (which might i add is AMAZING) many times but have never left a message. I find your courage so amazing and uplifting. If the world was in need of an example of true courage and lust for life in the face of adversity i would say that you two are the best example we could ever hope to get. I don't really know what else i can say. Seeing as school starts in just 2 weeks (UGH) I hope that you had a great summer vacation Ashley. I hope your next year goes very well and that you enjoy seventh grade. Study hard but be sure to leave some time for FUN!!! Hope this message reaches you all in good spirits. Meg Hi ashley and lori! Long time no talk! I jus cam to check how everything was going! Glad to see everything is great! The progeria project foundation was such a great idea...if ya need any help w/ it jus email me like old times!!! toodles!! melanie Hi everyone. I so enjoyed seeing the Progeria 2003 pictures, and was hoping to see Davina Wilson in some of them. I was lucky enough to meet Ms. Davina while my twin sister was in the hospital in Spokane. I learned then, that Davina and her family live in Newport, WA. Does anyone have a contact address for them? I have just met a woman named Davina too....and thought it would be fun to introduce them to one another. (((((big yet gentle hugs))))) From Sandi xoxo I just wanted to say that these kids are an inspiration to us all. They battle this disease with strength and courage. They are truly beautiful inside and out. Hello my name is mike I am music composer for the DDRoyal music band we performed at the GuitarsForLife beninfir concert for yous, yous were a pleasure to perform for yous were all great and I wish only the best for ya, if there is anything i can do musically for you just let me know, lots of luck Mike www.DDRoyal.com Hello My Name is Mike- Composer/ Guitar for the DDRoyal Music band we performed at the GuitarsforLife benifit concertfor yous' a while ago and just wanted to add you are very special people as I would like to offer my musical services to yous to help you in any way possible Keep up the "great work! Mike I admire the way that you have dealt with this rare syndrome. I pray in my heart that no one treats you any differently from any one else. Continue to live each day to the fullest!!!! I did a health research project about Progeria last year (8th grade) and I came across some webpages made by the families of children afflicted with Progeria. I think that they are amazing people, and this site does a wonderful job of explaining their position, disease, and lives. Keep it up!
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